National Healthcare Decisions Day is April 16th. I hadn’t really expected the Centers for Disease Control to be one of the leading resources for my intro on this topic, but they had quite a bit to say: April 16th is recognized each year as National Healthcare Decisions Day to inspire, educate, and empower the public […]
As regular readers of the NDY blog know, the disability community has concerns about Physician Orders for Life-Sustaining Treatment (POLST). (For NDY’s overall take on the subject, go here, and for NDY’s summary policy paper on POLST, go here.) For one thing, even though it says “for” life-sustaining treatment, it would be more accurate to say “on” […]
For PRWeb’s pdf version of the Press Release, click here. The public comments described in the release are available in a five minute video, the text of the video, and full written comments with citations. Summary: Not Dead Yet President and CEO Diane Coleman has submitted video and written public comments to the Institute of […]
Submitted by Diane Coleman of Not Dead Yet to the Institute of Medicine’s Committee on Approaching Death July 23, 2013 in Houston, TX Introduction – Why Disability Perspectives Must Be Considered These public comments are being submitted by Diane Coleman, President and CEO of Not Dead Yet, a national disability rights organization that addresses “end of […]
Much of the state level legislative activity concerning POLST (Physician Orders for Life-Sustaining Treatment) has been carried out under the general public’s radar. But when Governor Chris Christie vetoed the New Jersey POLST bill yesterday, it hit the news feed. According to NEWJERSEYNEWSROOM.COM and the Governor’s veto message – While noting the prospective benefits in […]
I just learned that the Illinois legislature passed a bill authorizing Physician Orders on Life-Sustaining Treatment (POLST) (ILH 3134) which was signed by the Governor last week. We haven’t addressed POLST on the NDY blog yet, but it’s a primary focus of legislative activism on the part of the so-called “end-of-life” coalitions that formed during […]
The New York Department of Health recently requested public input from health care providers and patients on how to make advance care planning forms more understandable and easy to use. The Department provided a response template with questions focused on people’s experiences with three forms: the health care proxy, out-of-hospital do not resuscitate order (DNR) […]
Not Dead Yet Response to Advance Care Planning Request for Information The following responses pertain to the indicated numbered questions in the New York State Department of Health Advance Care Planning Use Questionnaire 1) Please provide your contact information, including the name of your organization (if applicable), name of contact person, title, phone number, and e-mail […]
U.S. Department of Health and Human Services Office for Civil Rights Attention: 1557 RFI (RIN 0945-AA02) Hubert H. Humphrey Building, Room 509F 200 Independence Avenue SW Washington, DC 20201 Re: 1557 NPRM (RIN 0945–AA02) Not Dead Yet is a national disability rights group, which advocates for non-discrimination against people with disabilities in the context of what is […]
NDY’s comment letter can be summarized as follows: We do not oppose payment to physicians for advance care planning discussions with their patients, but we want the payment regulation delayed until the disability community and others can, with CMS support, develop new advance care planning informational materials that do not rely on “better dead than […]
