The Charlie Gard case concerns a young British child with a very rare genetic condition that has currently left him unable to move, breathe or eat on his own. His parents wanted to take him to the United States for experimental treatment but his London doctors, believing he has suffered enough, wanted to turn off … Continue reading Lisa Blumberg: What Principles Should Govern Charlie Gard’s Case?
Last Thursday, Not Dead Yet was one of “over 70 individual patients and patient organizations” that joined the Partnership to Improve Patient Care (PIPC) in a letter to the Department of Health and Human Services (HHS), calling for recognition of us as stakeholders in the Better, Smarter, Healthier initiative and in the Health Care Payment Learning and Action Network. … Continue reading Disability Advocates Demand Seat At the HHS Table In Design of Value-Based Healthcare Payment Systems
As many readers are probably aware, news broke last week that Princeton bioethicist Peter Singer had once again pushed the envelope on his decades-long assault on the value and lives of disabled people. In remarks broadcast live, Singer asserted that both government healthcare and private insurance can and should deny and/or limit healthcare to people … Continue reading Denounce Lethal Anti-Disability Healthcare Policy Advocated by Peter Singer (Change.org)
Art Caplan can be frustrating. He’s been everywhere in the media as the number 1 face and voice of bioethics here in the USA. He’s frustrating because his comments and analyses regarding bioethical issues vary in their quality and even accuracy. I think that part of that is due to the fact that part of … Continue reading Bioethicist Art Caplan Posts Sloppy, Confused and Inaccurate Mess About Assisted Suicide on Medscape
Readers of this blog will hopefully remember the story of Haleigh Poutre, a child in Massachusetts who was abused and then neglected, failed and abandoned by just about every professional whose job it was to act to safeguard her welfare and safety. She became the subject of a life and death* court battle that sanctioned … Continue reading Haleigh Poutre’s New Life and the Flawed Lessons People are Taking Away From Her Story