Category Archives: devaluation

Federal study finds QALYs restrict access to lifesaving healthcare for people with disabilities

bioethics, devaluation, healthcare rationing, medical discrimination, national council on disability, Our News & Commentary Blog, qaly, Quality Adjusted Life Years, ,

The National Council on Disability issued the following release on November 6, announcing the latest report in its bioethics series. Federal study finds certain health care cost-effectiveness measures discriminate, restrict access to lifesaving treatments for people with disabilities For Immediate Release                              … Continue reading Federal study finds QALYs restrict access to lifesaving healthcare for people with disabilities →

Disability Advocates Demand Seat At the HHS Table In Design of Value-Based Healthcare Payment Systems

bioethics, cost containment, daly, devaluation, medical bigotry, medical discrimination, Medicare, Our News & Commentary Blog, qaly, , ,

Last Thursday, Not Dead Yet was one of “over 70 individual patients and patient organizations” that joined the Partnership to Improve Patient Care (PIPC) in a letter to the Department of Health and Human Services (HHS), calling for recognition of us as stakeholders in the Better, Smarter, Healthier initiative and in the Health Care Payment Learning and Action Network. … Continue reading Disability Advocates Demand Seat At the HHS Table In Design of Value-Based Healthcare Payment Systems →

More on Double Euthanasia in Belgium, National Federation of the Blind Reacts, and Other Suicides in the News

Aaron Swartz, Belgium, deaf-blind, devaluation, euthanasia, National Federation of the Blind, Oskar the Blind Cat, Our News & Commentary Blog, pets, reality check, suicide

The 24+ hours since I posted on the double euthanasia of two deaf men in Belgium has resulted in some developments, varied reactions, and some reflection on my own part.  My apologies if this post seems a little scattered – a little like mental  multi-colored pasta thrown against the wall –  but sometimes that’s how … Continue reading More on Double Euthanasia in Belgium, National Federation of the Blind Reacts, and Other Suicides in the News →

New Bill Peace-Related Response – ‘Who would want a child like that?’

bill peace, bioethics, bloggers, devaluation, Hastings Center, medical decisionmaking, medical discrimination, Our News & Commentary Blog

There’s an interesting new response to Bill Peace’s essay in the Hastings Center Report in which Bill described a very disturbing late-night visit by a physician while Bill was hospitalized for care and complications relating to a stage IV skin breakdown.  An excerpt has been posted as a comment on Bill’s response to invited reactions … Continue reading New Bill Peace-Related Response – ‘Who would want a child like that?’ →

Bill Peace’s Hastings Center Article (on a disturbing hospital experience) and Three Commentaries Are All Online

"end of life", bioethics, devaluation, life-ending decisions, medical bigotry, medical discrimination, Our News & Commentary Blog, palliative care, rush to judgment, william peace

As of today, Bill Peace’s essay “Comfort Care as Denial of Personhood” is online – and accompanied by three commentaries available at the Hasting Center Bioethics Blog. Here’s what we wrote before about the experience at the center of Bill’s essay: Back in 2010, our friend, colleague and ally Bill Peace, experienced a long, expensive … Continue reading Bill Peace’s Hastings Center Article (on a disturbing hospital experience) and Three Commentaries Are All Online →