Not Dead Yet and other disability advocates and rehabilitation physicians have worked with Respecting Choices, a national leader in the field of advance care planning, to develop fact sheets on feeding tubes and breathing supports. Today, they announce the results of an over two year collaborative effort. The project began following an open letter from … Continue reading Not Dead Yet and Respecting Choices Announce Successful Collaboration
NDY’s comment letter can be summarized as follows: We do not oppose payment to physicians for advance care planning discussions with their patients, but we want the payment regulation delayed until the disability community and others can, with CMS support, develop new advance care planning informational materials that do not rely on “better dead than … Continue reading NDY Files Public Comment on CMS Proposal on Advance Care Planning
We in the disability community have a stronger appreciation than most people of the opportunities technology can bring. Power wheelchairs and vans offer us mobility. Voice-activated software and screen readers unleash the power of computers. Environmental control systems allow us to manage things around the house, like opening doors and answering the phone. But some … Continue reading Guest Blog by Cathy Ludlum: Better Dead Than Fed? NOT!