Category Archives: futile care

Sad News: The Passing of Disability Rights Attorney Andres Gallegos

We learned of this yesterday in a message shared by his family: It is with tremendous sadness that we share the passing of our father. Andrés passed away on the afternoon of December 1st, surrounded by his family and wrapped in love. While there will never be a time that we are ready to say … Continue reading Sad News: The Passing of Disability Rights Attorney Andres Gallegos

Lisa Blumberg: Recent Medscape Survey Indicates that Doctors are Divided on Life and Death Issues

Recent Medscape Survey Indicates that Doctors are Divided on Life and Death Issues by Lisa Blumberg Medscape is an online resource for healthcare professionals. It provides medical news and information and does surveys on current issues. (1) Its 2022 survey of 4100 U.S. doctors on “Right and Wrong in Medicine: Life, Death and Wrenching Choices” … Continue reading Lisa Blumberg: Recent Medscape Survey Indicates that Doctors are Divided on Life and Death Issues

30 Organizations Urge HHS/OCR To Take New Steps To Prevent Healthcare Discrimination

Not Dead Yet, with partners the Disability Rights Education & Defense Fund and the Patients Rights Action Fund, have assembled a total of 30 disability rights and racial justice organizations to support further regulatory action by the U.S. Department of Health and Human Services Office for Civil Rights. Specifically, the groups are urging the formal … Continue reading 30 Organizations Urge HHS/OCR To Take New Steps To Prevent Healthcare Discrimination

Michael Hickson: Disability Organizations Challenge Medical Futility & Surrogate Decisions

On July 24th, ADAPT of Texas filed a complaint with the federal Department of Health and Human Services Office for Civil Rights (OCR) concerning the death of Michael Hickson, a Black Disabled man, at St. David’s South Austin Medical Center. The complaint called for . . . “. . . an investigation of St David’s … Continue reading Michael Hickson: Disability Organizations Challenge Medical Futility & Surrogate Decisions

United Spinal Assn. Helped Fight A Futility Judgment And Won!

The hospital may not have called it a “futility judgment” when they pushed Chris Dunn to go into hospice as an alternative to spinal cord injury rehabilitation, but it’s hard to see it any other way. Here’s an extended excerpt from United Spinal Association’s New Mobility article “Refusing To Die: The Chris Dunn Story“: By … Continue reading United Spinal Assn. Helped Fight A Futility Judgment And Won!