Category Archives: Surrogate Decisions & Guardianship

NDY Submits Comments On Adult Protective Services Guidelines

The Administration for Community Living (part of the Administration on Aging within the U.S. Dept. of Health & Human Services) is seeking comments on draft voluntary consensus guidelines for Adult Protective Services.  The original deadline for comments was October 30, but it’s been extended to November 13.  More information and a portal for submitting online comments … Continue reading NDY Submits Comments On Adult Protective Services Guidelines

Haleigh Poutre’s New Life and the Flawed Lessons People are Taking Away From Her Story

Readers of this blog will hopefully remember the story of Haleigh Poutre, a child in Massachusetts who was abused and then neglected, failed and abandoned by just about every professional whose job it was to act to safeguard her welfare and safety.  She became the subject of a life and death* court battle that sanctioned … Continue reading Haleigh Poutre’s New Life and the Flawed Lessons People are Taking Away From Her Story

National Council on Disability Will Consider Proposal to Address Health Care Decisions Policies that Threaten the Lives of People With Disabilities

The National Council on Disability met on May 6th at the Ed Roberts Campus in San Francisco.  This is a presidentially appointed Council that advises the Administration on disability policy.  The Council always offers opportunities for public comment, and NDY has been asking NCD to help lead efforts to address abuses in health care decisions … Continue reading National Council on Disability Will Consider Proposal to Address Health Care Decisions Policies that Threaten the Lives of People With Disabilities

Not Dead Yet Submits Written Comments to IOM Transforming End-of-Life Care Committee

As folks who read this blog already know, the Institute of Medicine’s Transforming End-of-Life Care Committee sets aside a portion of its meeting agenda to receive public comments.  At the Committee’s second public meeting, held at Stanford on May 29, DREDF’s Marilyn Golden attended to provide public comments. Not Dead Yet previously submitted written input … Continue reading Not Dead Yet Submits Written Comments to IOM Transforming End-of-Life Care Committee

Why I Support the CRPD

This past week, the U.S. Senate voted to proceed with consideration of U.S.ratification of the United Nations Convention on the Rights of Persons with Disabilities (CRPD).  With a two-thirds majority required to move to the next step, the cloture vote was 61 to 36, with 3 not voting. Not Dead Yet has not yet formally … Continue reading Why I Support the CRPD