Category Archives: life-ending decisions

NDY Submits Comments On Adult Protective Services Guidelines

The Administration for Community Living (part of the Administration on Aging within the U.S. Dept. of Health & Human Services) is seeking comments on draft voluntary consensus guidelines for Adult Protective Services.  The original deadline for comments was October 30, but it’s been extended to November 13.  More information and a portal for submitting online comments … Continue reading NDY Submits Comments On Adult Protective Services Guidelines

NDY Files Public Comment on CMS Proposal on Advance Care Planning

NDY’s comment letter can be summarized as follows:  We do not oppose payment to physicians for advance care planning discussions with their patients, but we want the payment regulation delayed until the disability community and others can, with CMS support, develop new advance care planning informational materials that do not rely on “better dead than … Continue reading NDY Files Public Comment on CMS Proposal on Advance Care Planning

NDY Challenges NYS Medicaid Proposal to Save Money By Steering People to Choose Death Over Living With Disability

Not Dead Yet, the Center for Disability Rights, and 11 other NY based disability organizations, submitted public comments on the New York State Medicaid Delivery System Reform Incentive Payment Program (DSRIP) on May 28, 2014, alleging that one of the proposed projects would fund Medicaid providers to save money by steering people to choose death over … Continue reading NDY Challenges NYS Medicaid Proposal to Save Money By Steering People to Choose Death Over Living With Disability

John Kelly Talks About the Tim Bowers Case

On December 5, 2013, NDY’s John Kelly talked about the Tim Bowers case during public comments he provided by telephone to the National Council on Disability.  Bowers is the Indiana hunter who was injured in a fall and died the next day when he told doctors to stop life support.  John requested the Council’s help … Continue reading John Kelly Talks About the Tim Bowers Case

Not Dead Yet Submits Written Comments to IOM Transforming End-of-Life Care Committee

As folks who read this blog already know, the Institute of Medicine’s Transforming End-of-Life Care Committee sets aside a portion of its meeting agenda to receive public comments.  At the Committee’s second public meeting, held at Stanford on May 29, DREDF’s Marilyn Golden attended to provide public comments. Not Dead Yet previously submitted written input … Continue reading Not Dead Yet Submits Written Comments to IOM Transforming End-of-Life Care Committee