Category Archives: life-sustaining treatment

NYAIL Presents 2021 David Veatch Advocacy Achievement Award to Diane Coleman

NYAIL is the New York Association on Independent Living, a statewide, not-for-profit membership association created by and composed of Independent Living Centers across New York State. I was honored to receive NYAIL’s 2021 David Veatch Advocacy Achievement Award on September 29th. Below are my words of gratitude spoken at their virtual conference. Diane Coleman’s NYAIL … Continue reading NYAIL Presents 2021 David Veatch Advocacy Achievement Award to Diane Coleman

Not Dead Yet Joins National Call To Repair Or Replace Recalled Breathing Devices

Not Dead Yet Joins National Call To Repair Or Replace Recalled Breathing Devices [Rochester, NY, August 26, 2021] Today, Not Dead Yet joined in a letter from individuals who depend on recalled ventilators and other breathing devices manufactured by Philips Respironics, along with over two dozen disability organizations, demanding that Philips repair or replace the … Continue reading Not Dead Yet Joins National Call To Repair Or Replace Recalled Breathing Devices

NCIL’s Advocacy Priorities Guide Includes Key NDY Policy Issues

As July 26, the 31st Anniversary of the Americans With Disabilities Act, approaches, the National Council on Independent Living is holding its annual conference. NCIL has announced that its annual Advocacy Priorities Guide is now available, containing “specific information on the national legislative and policy priorities identified biannually by the NCIL membership.” NCIL’s Healthcare priorities include … Continue reading NCIL’s Advocacy Priorities Guide Includes Key NDY Policy Issues

Karen McCulloh, Nat’l. Org. of Nurses with Disabilities – Advisor: Basic Life Support

Recently,  Not Dead Yet News and Commentary, posted on May 27, 2021 an Op-Ed written by United Kingdom NDY founder, Baroness Jane Campbell who stated,   The Government should be helping people to live– not die through assisted suicide.  The National Organization of Nurses with Disabilities (NOND), a partner with NDY that stands against Physician Assisted … Continue reading Karen McCulloh, Nat’l. Org. of Nurses with Disabilities – Advisor: Basic Life Support

Coleman Quoted in Gothamist: The Pandemic Threatened Their Ventilators

[Ed. note: We previously reported on the court case discussed in the article below here: Not Dead Yet, NMD United, et al. Sue NY Governor On Ventilator Re-Allocation Guidelines.] The Pandemic Threatened Their Ventilators. Will NY Officials Change Course Before The Next Crisis? BY CAROLINE LEWIS MAY 27, 2021 When COVID-19 struck New York last spring, … Continue reading Coleman Quoted in Gothamist: The Pandemic Threatened Their Ventilators