Category Archives: medical bigotry

30 Organizations Urge HHS/OCR To Take New Steps To Prevent Healthcare Discrimination

Not Dead Yet, with partners the Disability Rights Education & Defense Fund and the Patients Rights Action Fund, have assembled a total of 30 disability rights and racial justice organizations to support further regulatory action by the U.S. Department of Health and Human Services Office for Civil Rights. Specifically, the groups are urging the formal … Continue reading 30 Organizations Urge HHS/OCR To Take New Steps To Prevent Healthcare Discrimination

Anita Cameron: Racial Disparities in the Age of COVID-19

Racial disparities in healthcare have always existed but it’s only been recently that it has been openly discussed as a serious issue in this country. Blacks and communities of color have always known about it because we experience it ourselves, first-hand. Studies show that we receive inferior healthcare compared to Whites. Little by little, the … Continue reading Anita Cameron: Racial Disparities in the Age of COVID-19

Disability Advocates Demand Seat At the HHS Table In Design of Value-Based Healthcare Payment Systems

Last Thursday, Not Dead Yet was one of “over 70 individual patients and patient organizations” that joined the Partnership to Improve Patient Care (PIPC) in a letter to the Department of Health and Human Services (HHS), calling for recognition of us as stakeholders in the Better, Smarter, Healthier initiative and in the Health Care Payment Learning and Action Network. … Continue reading Disability Advocates Demand Seat At the HHS Table In Design of Value-Based Healthcare Payment Systems

Disability and Representation blog: “Amanda Baggs, The Pressure To Die, and the Case Against Assisted Suicide” by Rachel Cohen-Rottenberg

For about a week now, activists and advocates have been engaging in the fight to safeguard the health and safety of Amanda Baggs, one woman dealing with medical ignorance, apparent bigotry, and regular messages that her life isn’t one worth saving.  Even now, a positive outcome isn’t assured. (I direct blog readers to just peruse … Continue reading Disability and Representation blog: “Amanda Baggs, The Pressure To Die, and the Case Against Assisted Suicide” by Rachel Cohen-Rottenberg

More Updates on Amanda Baggs and Links to Other Bloggers

It’s been a few days since an update on Amanda Baggs and her struggle to get past medical discrimination and get appropriate medical treatment has been shared here.  The good news is that the news of her scheduled surgery was true and her feeding tube is now in place. Now the bad news: In “So … Continue reading More Updates on Amanda Baggs and Links to Other Bloggers