Last Thursday, Not Dead Yet was one of “over 70 individual patients and patient organizations” that joined the Partnership to Improve Patient Care (PIPC) in a letter to the Department of Health and Human Services (HHS), calling for recognition of us as stakeholders in the Better, Smarter, Healthier initiative and in the Health Care Payment Learning and Action Network. … Continue reading Disability Advocates Demand Seat At the HHS Table In Design of Value-Based Healthcare Payment Systems
For about a week now, activists and advocates have been engaging in the fight to safeguard the health and safety of Amanda Baggs, one woman dealing with medical ignorance, apparent bigotry, and regular messages that her life isn’t one worth saving. Even now, a positive outcome isn’t assured. (I direct blog readers to just peruse … Continue reading Disability and Representation blog: “Amanda Baggs, The Pressure To Die, and the Case Against Assisted Suicide” by Rachel Cohen-Rottenberg
It’s been a few days since an update on Amanda Baggs and her struggle to get past medical discrimination and get appropriate medical treatment has been shared here. The good news is that the news of her scheduled surgery was true and her feeding tube is now in place. Now the bad news: In “So … Continue reading More Updates on Amanda Baggs and Links to Other Bloggers
Before I start with the specifics, here’s the short version – due to the overwhelming response of disability activists and allies, things changed for the better in terms of communication and setting an agenda for surgery – placement of a feeding tube that will hopefully prevent the frequent bouts Amanda Baggs has had with aspiration … Continue reading Updates on Amanda Baggs – Surgery is on for Today!
Amanda Bagg’s name and work should be familiar to a lot of people in the disability community. A lot of people might remember reading her blog essay “If I am killed” on our old site, where it was reproduced with permission – and will be put up again in the near future. Many more will … Continue reading Autistic Writer/Blogger/Activist Amanda Baggs Facing Life-Threatening Discrimination in Vermont Hospital