Category Archives: medical decisionmaking

NDY Submits Comments On Adult Protective Services Guidelines

The Administration for Community Living (part of the Administration on Aging within the U.S. Dept. of Health & Human Services) is seeking comments on draft voluntary consensus guidelines for Adult Protective Services.  The original deadline for comments was October 30, but it’s been extended to November 13.  More information and a portal for submitting online comments … Continue reading NDY Submits Comments On Adult Protective Services Guidelines

NDY Files Public Comment on CMS Proposal on Advance Care Planning

NDY’s comment letter can be summarized as follows:  We do not oppose payment to physicians for advance care planning discussions with their patients, but we want the payment regulation delayed until the disability community and others can, with CMS support, develop new advance care planning informational materials that do not rely on “better dead than … Continue reading NDY Files Public Comment on CMS Proposal on Advance Care Planning

Loose Ends – Last Two Essays on Bill Peace’s ‘Comfort Care As Denial of Personhood’ Up at Hastings Center Bioethics Forum

This is kind of old news by now, but it should be of interest to anyone who read previous posts on this topic.  I’d also urge anyone who hasn’t read Bill Peace’s essay to do so, along with the commentary posted on the Bioethics Forum at the Hastings Center Site. Just to refresh people’s memories … Continue reading Loose Ends – Last Two Essays on Bill Peace’s ‘Comfort Care As Denial of Personhood’ Up at Hastings Center Bioethics Forum

New Bill Peace-Related Response – ‘Who would want a child like that?’

There’s an interesting new response to Bill Peace’s essay in the Hastings Center Report in which Bill described a very disturbing late-night visit by a physician while Bill was hospitalized for care and complications relating to a stage IV skin breakdown.  An excerpt has been posted as a comment on Bill’s response to invited reactions … Continue reading New Bill Peace-Related Response – ‘Who would want a child like that?’

Philadelphia: Young Girl Being Denied Transplant Because Her “Retardation” Doesn’t Make Her “Worthy”

Recently, Diane Coleman wrote about new proposals to increase the pool of donor organs, and that have particularly disturbing ramifications in terms of the care and treatment of newly disabled individuals.  We already know that organ transplant teams are more than willing to obtain organs from individuals with long-term disabilities, as highlighted by the case … Continue reading Philadelphia: Young Girl Being Denied Transplant Because Her “Retardation” Doesn’t Make Her “Worthy”