Category Archives: medical discrimination

NDY Submits Comments On Adult Protective Services Guidelines

The Administration for Community Living (part of the Administration on Aging within the U.S. Dept. of Health & Human Services) is seeking comments on draft voluntary consensus guidelines for Adult Protective Services.  The original deadline for comments was October 30, but it’s been extended to November 13.  More information and a portal for submitting online comments … Continue reading NDY Submits Comments On Adult Protective Services Guidelines

NDY’s Letter to Governor Jerry Brown Urging Veto of Assisted Suicide Bill

[Editor’s Note:  NDY’s letter to Governor Brown enclosed a 1976 image of the Governor, during his previous stint as Governor of California, appointing Ed Roberts, considered the “father of independent living”, to head up the California rehabilitation agency.] September 21, 2015 Governor Jerry Brown c/o State Capitol, Suite 1173 Sacramento, CA 95814 Dear Governor Brown: Even … Continue reading NDY’s Letter to Governor Jerry Brown Urging Veto of Assisted Suicide Bill

Coleman Op-Ed: Why disability rights advocates oppose assisted suicide

This past Monday, the Syracuse Post Standard published an op-ed I wrote that gives a bit of the history behind the position that so many national disability groups have taken in opposing assisted suicide laws.  Our position often surprises people because we are also such strong supporters of self-determination by people with disabilities, but we … Continue reading Coleman Op-Ed: Why disability rights advocates oppose assisted suicide

Disability Advocates Demand Seat At the HHS Table In Design of Value-Based Healthcare Payment Systems

Last Thursday, Not Dead Yet was one of “over 70 individual patients and patient organizations” that joined the Partnership to Improve Patient Care (PIPC) in a letter to the Department of Health and Human Services (HHS), calling for recognition of us as stakeholders in the Better, Smarter, Healthier initiative and in the Health Care Payment Learning and Action Network. … Continue reading Disability Advocates Demand Seat At the HHS Table In Design of Value-Based Healthcare Payment Systems

Belated Update on Wisconsin Case: ASAN Files Second Amicus Brief for NDY and 13 Other Disability Groups

[This announcement is from the Autistic Self Advocacy Network (ASAN) and originally appeared on Feb. 2, 2015.] On Monday January 26, the Autistic Self Advocacy Network, Not Dead Yet, and 13 other disability rights organizations filed a second amicus brief in a case defending the rights of people with disabilities to basic medical care. Disability … Continue reading Belated Update on Wisconsin Case: ASAN Files Second Amicus Brief for NDY and 13 Other Disability Groups