Category Archives: NDRN

Disability Rights Leadership Institute on Bioethics: Advancing the Disability Rights Perspective on Bioethics Issues

Months of work came to fruition on April 25 – 26, 2014 at the Crystal City Marriott in Arlington, VA.  Conference planning experts told us to expect a 10% no show rate, but out of our final count of 68 who signed up to attend (we had initially expected about 50), only 3 missed it.  … Continue reading Disability Rights Leadership Institute on Bioethics: Advancing the Disability Rights Perspective on Bioethics Issues

Not Dead Yet Submits Written Comments to IOM Transforming End-of-Life Care Committee

As folks who read this blog already know, the Institute of Medicine’s Transforming End-of-Life Care Committee sets aside a portion of its meeting agenda to receive public comments.  At the Committee’s second public meeting, held at Stanford on May 29, DREDF’s Marilyn Golden attended to provide public comments. Not Dead Yet previously submitted written input … Continue reading Not Dead Yet Submits Written Comments to IOM Transforming End-of-Life Care Committee

Why I Support the CRPD

This past week, the U.S. Senate voted to proceed with consideration of U.S.ratification of the United Nations Convention on the Rights of Persons with Disabilities (CRPD).  With a two-thirds majority required to move to the next step, the cloture vote was 61 to 36, with 3 not voting. Not Dead Yet has not yet formally … Continue reading Why I Support the CRPD

NDRN’s Report Should Serve As a Call to Conscience for Health Care Providers

The recommendations contained in the National Disability Rights Network’s (NDRN)report, “Devaluing People With Disabilities: Medical ProceduresThat Violate Civil Rights,” constitute nothing less than a call to conscience for health care providers who are withholding life-sustaining treatment without consent from people with disabilities who are not otherwise dying. Sometimes this is done at the request of … Continue reading NDRN’s Report Should Serve As a Call to Conscience for Health Care Providers

National Disability Rights Group: Study Finds Medical System Violates Civil Rights of Disabled People

I apologize for being a little late getting this news out from the National Disability Rights Network (NDRN).  There are two important issues affecting people with disabilities.  One, as the headline of the press release states, is the violation of people’s basic rights by surgical and other modifications on people’s bodies without any judicial review.  … Continue reading National Disability Rights Group: Study Finds Medical System Violates Civil Rights of Disabled People