Not Dead Yet engages in dialogue and provides input to policy makers in a variety of contexts, such as commenting on proposed regulations, urging appropriate action by public or private decision-makers, agencies, governmental or quasi governmental bodies, and joining in policy letters with other disability rights organizations.
Below are links to some examples of Not Dead Yet’s policy work:
NDY Public Comment on Proposed Revision to National Institutes of Health Mission Statement (11/24/23)
NDY Public Comment on HHS/OCR Proposed Section 504 Healthcare Regulations (11/11/23)
NDY Submits Public Comment on CMS Proposed Rule Re: Home Health Workers (08/28/23)
NDY Submits Public Comment On Proposed ACA Rule 1557 Change (10/04/22)
Oppose the Flawed New York DNR Restoration Bill A204/S4685 (05/10/22)
NDY Public Comment on CDC Draft Updated Clinical Practice Guideline for Prescribing Opioids (04/11/22)
NDY Public Comment On Federal Healthcare Interim Final Rule In Response To COVID (01/04/21)
NDY Public Comment on Draft PCORI Principles (11/13/20)
Not Dead Yet Comment On Draft COVID-19 Vaccine Allocation Framework (09/04/20)
Public Comment Opposing Proposed Medicaid PASRR Changes (05/20/20)
NDY Urges USCIS To Reverse Policies That Kill Ill and Disabled Immigrant Children (09/10/19)
NDY Public Comment to HHS Regarding Nondiscrimination in Certain Health Programs or Activities (08/13/19)
NDY Public Comment on Proposed “Public Charge” Rule of the Dept. of Homeland Security (12/07/18)
NDY Response to NY Dept. of Health Advance Care Planning Request for Information (11/15/18)
NDY Public Comment To Virginia Joint Commission on Health Care Opposing Assisted Suicide Legislation (10/15/18)
Public Comment On Proposed Opioid Prescription Policy Under the Oregon Health Plan (07/28/18)
NDY Public Comment To U.S. Senate Aging Committee About Guardianship & Its Alternatives (07/19/18)
Not Dead Yet (USA) Submission Opposing New Zealand End of Life Choice Bill (03/05/18)
The Opioid Crisis the News Isn’t Talking About (02/20/18)
NDY Submission re: Draft General Comment on Article 6 of the International Covenant on Civil and Political Rights (Oct. 6, 2017)
NDY Public Comment on OPTN Proposal Regarding Living Organ Donation by Persons with Certain Fatal Diseases (Oct. 1, 2017)
NDY Letter Supporting AMA Policy Against Assisted Suicide (Nov. 11, 2016)
NDY Public Comment on banning JRC Shock Devices (July 25, 2016)
NDY’s Public Comment on Affordable Care Act’s Nondiscrimination Regulations (Nov. 9, 2015)
NDY Comments on Adult Protective Services Guidelines – Assisted Suicide (Oct. 30, 2015)
NDY Comments on Adult Protective Services Guidelines – Health Care Decision-Making (Oct. 30, 2015)
Statement of Not Dead Yet (USA) to Canadian Panel on Carter Case Decision (Oct. 14, 2015)
NDY Files Public Comment on CMS Proposal on Advance Care Planning (Sept. 8, 2015)
NDY Letter to HHS Secretary Burwell: Disability Input Needed on Value Based Payment Systems (May 1, 2015)
Not Dead Yet Comment on Institute of Medicine’s Report on Dying in America (Mar. 13, 2015)
NDY Public Comment to the National Council on Disability Urging Reissue of Position paper on Assisted Suicide (Jan. 12, 2015)
NDY and Center for Disability Rights Comment Letter to New York Medicaid Opposing “Conversation Ready” Project As a Way to Save Money (May 28, 2014)
Public Comments to the National Council on Disability: “End the UNEthics Committees” or “Nothing About Us Without Us!” (May 6, 2014)
Second Thoughts Massachusetts Letter to New Mexico Attorney General Gary King Urging Appeal of Assisted Suicide Case (Feb. 7, 2014)
NDY Letter to New Mexico Attorney General Gary King Urging Appeal of Assisted Suicide Case (Jan. 22, 2014)
National Disability Letter on Living With Feeding Tubes and Breathing Support (Dec. 20, 2013)
John Kelly’s NCD Comment: New Disability and the Rush to Judgment (Dec. 5, 2013) (video comment)
John B. Kelly’s Response to Institute of Medicine’s Committee on Approaching Death Online Survey (Nov. 1, 2013)
Diane Coleman’s Response to Institute of Medicine’s Committee on Approaching Death Online Survey (Oct. 31, 2013)
Not Dead Yet Public Comment on Revised Proposed Donation After Cardiac/Circulatory Death (DCD) Protocols (Oct. 17, 2013)
Not Dead Yet’s Public Comment to U.S. Dept. of Health and Human Services on Affordable Care Act’s Nondiscrimination Regulations (Sept. 30, 2013)
Not Dead Yet Comments to Organ Procurement and Transplantation Network (Sept. 9, 2013)
Not Dead Yet Public Comments on Futility Before the National Council on Disability (July 25, 2013, Video Comments, Video Text, Full Written Comments)
Not Dead Yet Public Comments on Disability Related Concerns About POLST Submitted to Institute of Medicine’s Committee on Approaching Death (July 23, 2013, Video Comments, Video Text, Full Written Comments)
Not Dead Yet Public Comment on Proposed Donation After Cardiac/Circulatory Death (DCD) Protocol (June 19, 2013)
Comments on Futility by Diane Coleman on Behalf of Not Dead Yet Before the National Council on Disability (April 22, 2013)
Recommendations of Two Additional Members of the Institute of Medicine’s Transforming End of Life Care Committee (January 29, 2013)
Not Dead Yet Disability Advocates Critical of C&C’s Promotion of Death by VSED
Not Dead Yet Comments on Proposed “Plain Language Rewrite” of Bylaws of the Organ Procurement and Transplantation Network (August 28, 2012)
Letter to Montana Medical Board urging rescission of assisted suicide position statement (July 18, 2012)
ADAPT, DREDF, NCIL and ASAN Leaders Oppose Assisted Suicide – Flyer (June 30, 2012) PDF | TXT | HTML
Not Dead Yet Comments on the Proposal to Update and Clarify Language in the DCD (Donation after Cardiac Death) (June 14, 2012)
Letter to Dr. Phil Show regarding “Deadly Consequences” segment with organizational sign ons (May 29, 2012)
Comments to the Organ Procurement and Transplantation Network/United Network for Organ Sharing (Jan. 12, 2012)