Tag Archives: Health care decision making

ADAPT of Texas Protests Hospital Killing of Michael Hickson, A Black Disabled Man

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ADAPT of Texas members protested on June 28th in front of St. David’s Hospital in Austin where they refused treatment and starved to death Michael Hickson, a black disabled man who died on June 11th, 2020. ADAPT of Texas reported that Michael Hickson was a quadriplegic with a brain injury who was refused treatment for … Continue reading ADAPT of Texas Protests Hospital Killing of Michael Hickson, A Black Disabled Man →

Update: Minnesota Hospital Agrees to Continue Oxygen for Catie

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Good news! Following intervention by attorneys, the Minnesota hospital that we previously reported had planned to stop providing oxygen to a woman with lung cancer decided to follow her wishes to continue treatment. This goes to show, as so many people with disabilities have experienced, that when there’s a power imbalance operating against you, get legal/advocate … Continue reading Update: Minnesota Hospital Agrees to Continue Oxygen for Catie →

Supplementing Your Advance Directive With A Video

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Kaiser Health News recently carried an article encouraging people to create videos to help explain what’s in their advance directives, which are often overly complex legal boilerplate or overly simplistic checkbox forms. One thing I like about the article, Straight From The Patient’s Mouth: Videos Can Clearly State Your End-Of-Life Wishes, is the discussion of … Continue reading Supplementing Your Advance Directive With A Video →

Lisa Blumberg: What Principles Should Govern Charlie Gard’s Case?

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The Charlie Gard case concerns a young British child with a very rare genetic condition that has currently left him unable to move, breathe or eat on his own. His parents wanted to take him to the United States for experimental treatment but his London doctors, believing he has suffered enough, wanted to turn off … Continue reading Lisa Blumberg: What Principles Should Govern Charlie Gard’s Case? →

Not Dead Yet and Respecting Choices Announce Successful Collaboration

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Not Dead Yet and other disability advocates and rehabilitation physicians have worked with Respecting Choices, a national leader in the field of advance care planning, to develop fact sheets on feeding tubes and breathing supports. Today, they announce the results of an over two year collaborative effort. The project began following an open letter from … Continue reading Not Dead Yet and Respecting Choices Announce Successful Collaboration →