NDY Is Not Working in Coalition with the Family Research Council – And Here’s Why

…30 Disability Rights and the Case Against Assisted Suicide- John Kelly (TBD-Skype) (Second Thoughts MA and New England Regional Director, Not Dead Yet) An asterisk appeared beside the names of seven confirmed speakers, and there was no asterisk by John’s name or one other listed speaker. Later Friday evening, John received a call from one of the confirmed speakers, inviting him to speak at the gathering via Skype. Needless to say, John declined, a…

DREDF’s Marilyn Golden Provides High Powered Public Comments to IOM Transforming End-of-Life Care Committee

…and Defense Fund (DREDF) Before the Institute of Medicine Transforming End-of-Life Care Committee May 29, 2013 I’m Marilyn Golden, Senior Policy Analyst at the Disability Rights Education and Defense Fund. We’re a leading national law and policy center on disability civil rights. We have many concerns – –the common thread is the many stories we hear from people with disabilities, again and again, illustrating that our lives are seen as less worth…

Not Dead Yet Submits Written Comments to IOM Transforming End-of-Life Care Committee

…’s a start. Public Comment for the Institute of Medicine’s Transforming End-of-Life CareCommittee – By Diane Coleman, President/CEO, Not Dead Yet Submitted June 4, 2013 My name is Diane Coleman and I’m the President and CEO of Not Dead Yet[i], a national disability rights organization focused on public policy related to many of the issues that this Committee will address. Last Friday in upstate New York, the Democrat and Chronicle newspaper report…

Amy Hasbrouck: The ADA is Not Dead Yet and So Are We

…abuse in the medical system. And I certainly didn’t anticipate working side-by-side with people of faith with whom I disagree on many political and social issues. We knew that the ADA would not end disability discrimination. What we didn’t know is that we would have to be fighting 25 years later against the ultimate, deadliest form of discrimination. There is a generation of disabled people who have never known a world without the ADA. Many are ex…

Please Think Of Not Dead Yet On Giving Tuesday

…o the NY Dept. of Health Advance Care Planning Request for Information. Non-Discrimination in Healthcare: NDY worked with DREDF to spearhead communications with the federal HHS Office for Civil Rights to advocate for improved policies on non-discrimination in organ transplant eligibility, futility and suicide prevention. NDY also filed 5 public comments on various policy issues and signed on to 16 policy letters and position statements. Conference…