Category Archives: ethics committee

NDY Comment on Comment on Proposed Texas Futility Regulations

ableism, advance directives, better dead than disabled, ethics committee, futile care, futility, Health care decision-making, life-sustaining treatment, Lisa Blumberg, Our News & Commentary Blog, public comment, quality of life judgments, , , , ,

July 12, 2024 HHS Office of Inspector General – Chief Counsel Division P.O. Box 85200 Austin, Texas 78708 Email: IG_Rules_Comments_Inbox@hhsc.state.tx.us RE: Proposed Regulations published in the June 14, 2024 Texas Register Dear Chief Counsel: Not Dead Yet is a national disability rights organization focused on combatting disability- based healthcare discrimination, particularly in the context of … Continue reading NDY Comment on Comment on Proposed Texas Futility Regulations →

Michael Hickson: Disability Organizations Challenge Medical Futility & Surrogate Decisions

ADAPT, bioethics, ethics committee, futile care, futility, Health care decision-making, healthcare rationing, life-ending decisions, life-sustaining treatment, medical discrimination, Michael Hickson, national council on independent living, Our News & Commentary Blog, surrogate decision making, Surrogate Decisions & Guardianship, treatment withdrawal, , , ,

On July 24th, ADAPT of Texas filed a complaint with the federal Department of Health and Human Services Office for Civil Rights (OCR) concerning the death of Michael Hickson, a Black Disabled man, at St. David’s South Austin Medical Center. The complaint called for . . . “. . . an investigation of St David’s … Continue reading Michael Hickson: Disability Organizations Challenge Medical Futility & Surrogate Decisions →

ADAPT of Texas Protests Hospital Killing of Michael Hickson, A Black Disabled Man

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ADAPT of Texas members protested on June 28th in front of St. David’s Hospital in Austin where they refused treatment and starved to death Michael Hickson, a black disabled man who died on June 11th, 2020. ADAPT of Texas reported that Michael Hickson was a quadriplegic with a brain injury who was refused treatment for … Continue reading ADAPT of Texas Protests Hospital Killing of Michael Hickson, A Black Disabled Man →

National Council on Disability Will Consider Proposal to Address Health Care Decisions Policies that Threaten the Lives of People With Disabilities

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The National Council on Disability met on May 6th at the Ed Roberts Campus in San Francisco.  This is a presidentially appointed Council that advises the Administration on disability policy.  The Council always offers opportunities for public comment, and NDY has been asking NCD to help lead efforts to address abuses in health care decisions … Continue reading National Council on Disability Will Consider Proposal to Address Health Care Decisions Policies that Threaten the Lives of People With Disabilities →