Category Archives: qaly

NDY Joins Over 80 Groups Opposing “Quality Adjusted Life Years” Measures

The American Association of People with Disabilities issued the following press release announcing the more than 80 organizations that signed a letter calling on policymakers to reject health policies that discriminate. NDY’s President/CEO was quoted in the release below. The letter is in pdf and text formats, here and here, respectively. Advocates for People with Disabilities, … Continue reading NDY Joins Over 80 Groups Opposing “Quality Adjusted Life Years” Measures

NDY Joined In PIPC Comment, and Filed Its Own, Regarding PCORI Principles

At first, responding to the draft principles of the Patient-Centered Outcomes Research Institute (PCORI) seemed more complex than NDY could fit into our tight schedules. But the principles were in response to new language added to PCORI’s authorizing law: . . . In addition to the relative health outcomes and clinical effectiveness, clinical and patient-centered … Continue reading NDY Joined In PIPC Comment, and Filed Its Own, Regarding PCORI Principles

Federal study finds QALYs restrict access to lifesaving healthcare for people with disabilities

The National Council on Disability issued the following release on November 6, announcing the latest report in its bioethics series. Federal study finds certain health care cost-effectiveness measures discriminate, restrict access to lifesaving treatments for people with disabilities For Immediate Release                              … Continue reading Federal study finds QALYs restrict access to lifesaving healthcare for people with disabilities

NDY Demands Prohibition On Use of QALYs To Limit Health Coverage

Not Dead Yet is deeply concerned by the New York Legislature’s failure to protect people with disabilities from discrimination in the budget passed this week.  Despite widespread criticism from the disability community, the Legislature incorporated language in the budget authorizing the state to use third party assessments, including those relying on the discriminatory and harmful Quality Adjusted Life … Continue reading NDY Demands Prohibition On Use of QALYs To Limit Health Coverage

Disability Advocates Demand Seat At the HHS Table In Design of Value-Based Healthcare Payment Systems

Last Thursday, Not Dead Yet was one of “over 70 individual patients and patient organizations” that joined the Partnership to Improve Patient Care (PIPC) in a letter to the Department of Health and Human Services (HHS), calling for recognition of us as stakeholders in the Better, Smarter, Healthier initiative and in the Health Care Payment Learning and Action Network. … Continue reading Disability Advocates Demand Seat At the HHS Table In Design of Value-Based Healthcare Payment Systems