Category Archives: qaly

New 504 Rule Prohibits Discrimination in Suicide Prevention Services, Bars QALYs

ableism, assisted suicide, HHS, medical discrimination, Our News & Commentary Blog, public comment, qaly, Quality Adjusted Life Years, quality of life judgments, suicide prevention, , ,

Last November, NDY filed a Public Comment on HHS/OCR Proposed Section 504 Healthcare Regulations. This week, the Department of Health and Human Services announced the finalization of the new regulationprohibiting disability discrimination in healthcare under Section 504 of the Rehabilitation Act. While the primary focus of our public comment was the denial of life-sustaining healthcare … Continue reading New 504 Rule Prohibits Discrimination in Suicide Prevention Services, Bars QALYs →

Matt Valliere On the Many Harms of Medical Quality of Life Judgments

"death with dignity", ableism, assisted suicide, better dead than disabled, COVID-19, healthcare rationing, lifeboat ethics, Matt Valliere, Me Before You, medical discrimination, Michael Hickson, million dollar baby, Newsweek, op-ed, Our News & Commentary Blog, Patients Rights Action Fund, qaly, Quality Adjusted Life Years, quality of life judgments, treatment withdrawal, , , ,

On November 2, Newsweek published an excellent op-ed by Matt Valliere, Executive Director of the Patients Rights Action Fund (PRAF), entitled The Brutal, Tragic, Consequences of Quality of Life Judgements. Though PRAF’s mission is focused on opposing assisted suicide laws, the op-ed does an uncommonly good job discussing other discriminatory and harmful medical practices that … Continue reading Matt Valliere On the Many Harms of Medical Quality of Life Judgments →

NDY Joins Over 80 Groups Opposing “Quality Adjusted Life Years” Measures

AAPD, health disparities, healthcare rationing, medical discrimination, Our News & Commentary Blog, qaly, Quality Adjusted Life Years, quality of life judgments

The American Association of People with Disabilities issued the following press release announcing the more than 80 organizations that signed a letter calling on policymakers to reject health policies that discriminate. NDY’s President/CEO was quoted in the release below. The letter is in pdf and text formats, here and here, respectively. Advocates for People with Disabilities, … Continue reading NDY Joins Over 80 Groups Opposing “Quality Adjusted Life Years” Measures →

NDY Joined In PIPC Comment, and Filed Its Own, Regarding PCORI Principles

cost containment, healthcare rationing, life-sustaining treatment, medical discrimination, Our News & Commentary Blog, public comment, qaly, Quality Adjusted Life Years, , ,

At first, responding to the draft principles of the Patient-Centered Outcomes Research Institute (PCORI) seemed more complex than NDY could fit into our tight schedules. But the principles were in response to new language added to PCORI’s authorizing law: . . . In addition to the relative health outcomes and clinical effectiveness, clinical and patient-centered … Continue reading NDY Joined In PIPC Comment, and Filed Its Own, Regarding PCORI Principles →

Federal study finds QALYs restrict access to lifesaving healthcare for people with disabilities

bioethics, devaluation, healthcare rationing, medical discrimination, national council on disability, Our News & Commentary Blog, qaly, Quality Adjusted Life Years, ,

The National Council on Disability issued the following release on November 6, announcing the latest report in its bioethics series. Federal study finds certain health care cost-effectiveness measures discriminate, restrict access to lifesaving treatments for people with disabilities For Immediate Release                              … Continue reading Federal study finds QALYs restrict access to lifesaving healthcare for people with disabilities →