Action Alert! Speak Out on Proposed Rules for ‘Procuring’ Organs from People with Disabilities

…lities: Medical Procedures that Violate Civil Rights, at pp. 10-11. http://www.ndrn.org/images/Documents/Resources/Publications/Reports/Devaluing_People_with_Disabilities.pdf The procedures outlined in the DCD proposal appear to treat people who depend on a ventilator or other form of life support, but are not otherwise terminally ill (e.g. from end stage cancer), as though they are expendable commodities rather than people. These individuals are…

NDY President Diane Coleman in DC with ADAPT! (Fighting for Medicaid)

…through Thursday morning. We plan to kick some butt. Photos live from the site will also be posted via Twitter. And of course, daily reports are available from the ADAPT Action Report compiled by Tim Wheat of Boulder ADAPT, which can be found at http://www.adapt.org/freeourpeople/2012/. Daily reports are often posted very late at night or in the mornings and they have some good eyewitness reports. BE ON THE LOOKOUT for Twitter or Facebook message…

Pittsburgh Post-Gazette: “They want us to die: You wouldn’t believe how many people hate those of us with autism”

…comments have been mostly positive – giving the appearance that the usual online trolls have taken a holiday. This is well worth a read, even if you think you’re already familiar with the hatred and hostility that exists toward autistic people and others with developmental disabilities. Below are the introductory paragraphs to “They want us to die: You wouldn’t believe how many people hate those of us with autism“: The adult autistic community dr…

Three recommended reads: Bill Peace on “Ashley and Me,” L Syd M Johnson critque of Jacob Appel on PVS and April Michelle Herndon on the “Magic Pill” Question

…Ashley treatment morally and ethically unacceptable. Given these polar opposite perspectives, what does an effective ethical consultation require? Read the rest of Ashley and Me at: http://www.thehastingscenter.org/Bioethicsforum/Post.aspx?id=4742&blogid=140#ixzz0tCqOdm7k Withholding Care from Vegetative Patients: Financial Savings and Social Costs was written by L Syd M Johnson. Johnson takes on a recent Huntington Post essay be Jacob Appel, who…

NDY Response to NY Dept. of Health Advance Care Planning Request for Information

…organization listed on a NYS Department of Health Advance Care Planning website? Health care provider education has tended to emphasize errors of overtreatment and has tended to neglect errors of undertreatment. The same is true of consumer education with respect to materials and public presentations concerning advance directives. There are many reasons for this. Before the patient’s or surrogate’s right to refuse treatment was firmly established…