Category Archives: disability rights advocates

In Memoriam: Bob Kafka: Pivotal National Disability Rights Advocate Passes Away at 79

On behalf of the Board of Directors of Not Dead Yet, we express profound sadness at the news that legendary ADAPT organizer, first ally of Not Dead Yet, and pivotal disability rights advocate, Bob Kafka has passed away at his Austin, Texas home on December 26, 2025. First, our deepest heartfelt condolences to Stephanie Thomas, Bob’s … Continue reading In Memoriam: Bob Kafka: Pivotal National Disability Rights Advocate Passes Away at 79

Press Release: Disability Advocates Testify In NYC Against Assisted Suicide Bill

For Immediate Release             Contacts:  Anita Cameron 720-413-9064 May 3, 2018                                               Diane Coleman 708-420-0539 (New York, NY) Disability rights advocates will testify at a New York Assembly Health Committee hearing today in opposition to a proposed bill (A.2383-A) legalizing doctor assisted suicide. The hearing will be held at 250 Broadway in Manhattan beginning at 11:00 a.m. Disability advocates … Continue reading Press Release: Disability Advocates Testify In NYC Against Assisted Suicide Bill

VIDEO: The Disability Community Responds to Me Before You movie

There’s a brand new video created by Carrie Ann Lucas celebrating protests of the movie “Me Before You” by the disability community on three continents. Carrie is on the Board of Directors of NDY and one of the leaders of Colorado NDY. Here’s how she describes the video: The disability community responded to the disability … Continue reading VIDEO: The Disability Community Responds to Me Before You movie

Not Dead Yet UK: “Real Disability Activists and Masquerades” by Dr. Kevin Fitzpatrick OBE

  (Editor’s Note – you can read this article at the Not Dead Yet UK site – that version includes a couple of links absent here.  Click title to go to original article.  Please read to the end – I’ve added a couple of links of my own on similar issues we’ve dealt with in … Continue reading Not Dead Yet UK: “Real Disability Activists and Masquerades” by Dr. Kevin Fitzpatrick OBE

Updates on Amanda Baggs – Surgery is on for Today!

Before I start with the specifics, here’s the short version – due to the overwhelming response of disability activists and allies, things changed for the better in terms of communication and setting an agenda for surgery – placement of a feeding tube that will hopefully prevent the frequent bouts Amanda Baggs has had with aspiration … Continue reading Updates on Amanda Baggs – Surgery is on for Today!