NDY Vlog: “What Is Ableism, and Why Does It Matter?”

…Health Care: https://pubmed.ncbi.nlm.nih.gov/33523… FilmDis Study: https://www.filmdis.com/wp-content/up… Michael Hickson Case: https://www.npr.org/2020/07/31/896882… Recording/Transcript between Melissa Hickson and doctor: https://www.youtube.com/watch?v=jq-_g… TRANSCRIPT Hello and welcome back to the Not Dead Yet vlog! My name is Jules Good, I use they/them pronouns, and I’m the Assistant Director and Policy Analyst at Not Dead Yet. I’m a white…

NDY Vlog Episode 2: Suicide Prevention and the Disability Double Standard

…nes/guidelines/suicide.pdf 3. CDC Frequent Mental Distress survey: https://www.cdc.gov/mmwr/volumes/69/wr/mm6936a2.htm?s_cid=mm6936a2_w 4. Prejudice against disabled people: https://www.c-q-l.org/resources/articles/most-people-are-prejudiced-against-people-with-disabilities/ 5. Osteoarthritis stats: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2920533/#:~:text=pain%20and%20disability.-,Osteoarthritis%20(OA)%20is%20the%20most%20common%20joint%20dis…

NDY Public Comment On Federal Healthcare Interim Final Rule In Response To COVID

…virus-related deaths in the U.S. are linked to nursing facilities. https://www.nytimes.com/interactive/2020/us/coronavirus-nursing-homes.html. [5] See https://www.npr.org/2020/07/31/896882268/one-mans-covid-19-death-raises-the-worst-fears-of-many-people-with-disabilities. [6] See https://www.nationaldisabilityinstitute.org/reports/extra-costs-living-with-disability/. [7] 42 U.S.C. § 1396(a)(47)(B) [8] See e.g., 42 U.S.C. § 1396a(e)(14)(H); 42 C.F….

NDY Public Comment on HHS/OCR Proposed Section 504 Healthcare Regulations

…de.org/wp-content/uploads/2023/04/Complaint_Accessible.pdf https://ncd.gov/sites/default/files/NCD_Medical_Futility_Report_508.pdf https://www.seattletimes.com/seattle-news/in-the-face-of-death-the-party-of-a-lifetime/ https://notdeadyet.org/2014/08/haleigh-poutres-new-life-and-the-flawed-lessons-people-are-taking-away-from-her-story.html https://supreme.justia.com/cases/federal/us/497/261/ https://notdeadyet.org/amicus-brief-in-disability-rights-…

Oregon Data Substantiates Critics’ Concerns

…dividuals, possibly as many as 100%, are disabled. Three of these reasons (loss of autonomy, loss of dignity, feelings of being a burden) could be addressed by consumer-directed in-home long-term care services, but no disclosures about or provision of such services is required. Some of the reported reasons are clearly psycho-social and could be addressed by disability-competent professional and peer counselors, but this is not required either. Bas…