Not Dead Yet Comments on the Proposal to Update and Clarify Language in the DCD (Donation after Cardiac Death)

…the one condition which the public has been conditioned to view as invariably and rapidly terminal (i.e. ALS), OPTN/UNOS might anticipate a broader and more concerned reaction to the proposed revisions. Furthermore, it must be noted that the previous, and withdrawn, proposal specifically mentioned people with “upper spinal cord injury” as DCD eligible. Among the national organizations that contacted OPTN/UNOS expressing concern about the previous…

Not Dead Yet Letter to Organ Procurement and Transplantation Network to Comment on Bylaws Plain Language Rewrite

…a salutary effect on another human being. I use the word “hover” deliberately, if a bit provocatively, because that is how families of many brain injury patients viewed it. I know this from interviews with more than 40 families, each with a member who had a disorder of consciousness, who came to Weill Cornell Medical College for enrollment in neuroimaging and EEG studies designed to elucidate mechanisms of recovery. While they were here, we conduc…

Statement of Not Dead Yet (USA) In Opposition To Tasmanian Proposal For Voluntary Assisted Dying II

…devalued old, ill and disabled. Otherwise, what looks like freedom is really only discrimination.   What Should We Learn From Elder Homicide/Suicides?   An increasingly common form of domestic violence became the subject of news coverage in Hawaii in late 2009. Seventy-one-year-old Robert Yagi had tended daily to his terminally ill wife’s needs and kept her company since she was hospitalized in October that year. He faced a charge of attempted mu…

Criste Reimer: The Political Turns Personal

…the country – in newspapers and on the internet. Criste Reimer was allegedly thrown off a fourth floor balcony by her husband. The early reports have led many in the public to believe her death is a moral lesson in either compassion, the cost of health care or both. Her family doesn’t think her death has anything to do with either of those issues. This all got unexpectedly personal. Some of Criste Reimer’s messages to online groups have been post…