Not Dead Yet’s Public Comment to U.S. Dept. of Health and Human Services on Affordable Care Act’s Nondiscrimination Regulations

…led that Haleigh Poutre should “pass away with dignity.” The day after the ruling the news was released that Poutre had clearly recovered some level of consciousness and she was transferred to rehabilitation. Jesse Ramirez was brain injured in a 2007 car accident in Arizona which occurred during argument between Mr. and Mrs. Ramirez. Mr. Ramirez was in coma and doctors could not say if he would wake up. Nine days after the accident, Mrs. Ramirez w…

Marilyn Golden, Presentation, Hartford, CT, 10-18-2013

…stee of his estate several months earlier, and had deeded his home to the trust. Middleton had instructed that the home be rented until the real estate market improved. Instead, Sawyer listed the property for sale two days after Middleton’s death. When the home sold, the proceeds were deposited into the accounts of Sawyer’s businesses. In Oregon, there is no investigation of assisted-suicide deaths, even with suspicious circumstances such as those…

NCD Comment by John Kelly, New Disability and the Rush to Judgment

…distorted and abused. Meaningful self-determination gets bypassed and obstructed in favor of a rush to judgment that cuts short the lives of newly disabled people based on ignorant and outmoded judgments about quality of life. We urge NCD to come up to speed on health care decisions laws because national guidance is needed to help reshape these laws to prevent discrimination in these life and death judgments. My written comments include action st…

Criste Reimer: The Political Turns Personal

…contacted Liz W., a woman who I know is connected to all of the types of forums in which I would have met Criste Reimer. Here’s what she had to say: “I have not stopped thinking of Criste and her family…it’s just so hard for me to believe her husband could claim to love her and do something like that to her. I’m heartbroken…We were on a few forums together, but I hadn’t heard from her for several months. She didn’t have a mean bone in her body. I’…

NY Times Story on NHBD – Selling instead of Reporting

…st. That’s the wrong discussion to be having. The real question, which the Ruben Navarro case reveals, is whether or not medical professionals have the ability to competently and ethically implement the protocol. (For a review of the details of the Navarro case, please check “Ruben Navarro and Our Need to Speak Out.” A transplant surgeon is facing serious charges for an alleged attempt to “hasten” Navarro’s death during this protocol when his hear…