A review of evidence supporting certain disability rights concerns about “end of life” advocacy

…asked if Not Dead Yet could be her surrogate. She said that she couldn’t trust her family. We’re not in a position to do that, but the need is there. This morning, I also mentioned the recent research showing that roughly half of doctors just assume that an advance directive always means a refusal of treatment. And I talked about futility policies, which allow doctors to overrule advance directives which say that the patient wants certain life-su…

NDLA Action Alert! (Wed, July 13): Contact the White House to Oppose Arbitrary Medicaid Cuts

…TE HOUSE TO OPPOSE ARBITRARY MEDICAID CUTS! Call and Email the White House TODAY! NDLA URGES YOU TO CONTACT THE WHITE HOUSE TO OPPOSE ARBITRARY MEDICAID CUTS! Call Toll Free at 1-888-245-0215 using the talking points below, and then Take Action to email key White House Officials. As the White House and congressional leaders look for ways to trim federal spending, Medicaid is squarely on the chopping block. The National Disability Leadership Allian…

Prepare to Take Action: National Disability Leadership Alliance Calls for Real Medicaid Reform

…upon our federal policy-makers to include us in the discussion so we can truly reform Medicaid. Over the next few days, NDLA will begin distributing action alerts. These alerts are intended to be used to mobilize our grassroots constituents. When you receive these alerts, please distribute them through your networks. And encourage people to respond as if their freedom, independence, and lives depend on it… because they do. About NDLA The National…

John B. Kelly’s Response to Institute of Medicine’s Committee on Approaching Death Online Survey

…these forms were for people near death. I asked her what she had been instructed about the form, and whether there were any materials for me. A few minutes earlier, she had given me the notification form for my annual flu shot. But nothing to accompany the MOLST form. She didn’t receive any training, either. And while I was confident filling out the form, others may not be. I believe people should receive notice that they will be hit with this ki…

Daniel J Vance – “Drake Isn’t Dead Yet”

…rent column, Drake Isn’t Dead Yet. This link is to the Rocklin & Roseville Today. I’ll add other I come across as they become available. From the column: When infant Stephen Drake was being born sideways breech in a New York hospital in the mid-’50s, a doctor wrongly used forceps to pull him from the womb. The resulting brain injury gave Drake hydrocephalus, which would require a lifelong brain shunt to manage. He also would have permanent challen…