…e advocate I know suggested that we need a disability educational campaign called ‘We Love Our Tubes’ or ‘Tube Pride.’” That advocate was John Kelly. Here, he tells more of his story to the Committee, responding to Question 1 of the online survey that closed last Friday. John’s response is also available on the Public Policy section of our website here. – Diane] I am a 55-year-old white man who is a quadriplegic based on a spinal cord injury in 19…
…ss – serving to obfuscate rather than clarify conversation; and if we’re really kinder to animals than to humans when it comes to killing them. The audio is available at this link. (player should pop up) The transcript is available here. And please feel free to leave a supportive comment on the main page. Accessing the page and leaving comments in support of the NDY viewpoint will encourage the show to get disability representatives on this and ot…
…spinal cord injury in 1984. The level of my injury was at the fourth cervical level, resulting in near total paralysis below my shoulders. My breathing ability survived the injury, and after diaphragmatic strengthening, I have breathed without assistance for the last 30 years. I drive a powered wheelchair with a sip/puff tube, live in the community with assistants I hire and manage myself, and work part-time as a disability rights advocate. I am…
…e and support. In two cases, their doctors gave them oxygen without mechanical breathing support, which is the wrong answer for people like us. My current doctors include some with the relevant expertise in neuromuscular disabilities. I don’t think that the importance of specialty knowledge related to specific disabilities can be over-estimated. But the other quality that my current doctors have is a willingness to listen to me, talk with me, and…
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