The Death of Christina Symanski – John Kelly and Bill Peace on Media, Perspective, Wrong Questions and Ignored Issues

February 17, 2012bill peace, Christina Symanski, dehydration, john kelly, media coverage, media issues, Our News & Commentary Blog, quadriplegia, starvation, suicide, VSEDStephen Drake

…. Christina lived at home and her mother did a lot of her care. For many 31-year-old, this would be unbearable. New Jersey now does have a PCA program, but I wonder did she got enough hours of care to meet her needs? When states and the federal government constantly underfund support programs, we disabled people get the message that we are not wanted. Finally, it sounds like Christina was not getting appropriate medical care. Unrelieved pain and a…

Long Discussion on Kevorkian and Related Topics with Stephen Hand

June 14, 2010assisted suicide, bioethics, blogtalkradio, euthanasia, Kevorkian, Our News & Commentary Blog, Peter Singer, Stephen HandStephen Drake

…positive media attention being given to Jack Kevorkian, mostly being stage-managed by HBO and CNN, which are both properties of Time-Warner. We also talked about Peter Singer, bioethics and Edwin Black and his book War Against the Weak. Stephen Hand comes from a different perspective than the secular one of NDY, and there are definitely some issues we wouldn’t see eye to eye on. But we’re very much in sync when it comes to euthanasia, assisted su…

Sarah Cavar: ASAN’s Invitational Summit on Supported Decision-Making

June 19, 2018ASAN, Autistic Self-Advocacy Network, Health care decision-making, long term services and supports, Our News & Commentary Blog, Sarah Cavar, supported decision making, Surrogate Decisions & GuardianshipASAN, Autistic Self Advocacy Network, supported decision makingDiane Coleman

…hs, particularly with regard to its importance for Not Dead Yet’s mission. Long-term Services & Supports (pp. 22-28) In the search for supports, we as disabled people should have access to those who can help us choose which services to use in the long-term. Some support networks act as agents, screening and recommending support staff for disabled people who may need them (with the disabled people making the final decision as to which services to u…

NDY Activist Mike Reynolds Testifies Against Maine Assisted Suicide Bills

April 23, 2017"death with dignity", assisted suicide, Maine, Mike Reynolds, Our News & Commentary Blogaid in dying, assisted suicide, death with dignity, MaineDiane Coleman

…e been concerned about their health care and with real issues affecting access to health care, and even critical treatments such as organ transplants becoming a political issue, now is not the time for this law. 1.https://dredf.org/wp-content/uploads/2012/08/A-Deadly-Model-Suicide-Contagion.pdf 2.http://www.oregonlive.com/portland/index.ssf/2013/09/portland_suicides_almost_three.html 3.http://www.medscape.com/viewarticle/742070_3…

Anita Cameron: In Disasters We Lose

December 17, 2018ADAPT, Anita Cameron, emergency management, fema, Our News & Commentary BlogAnita Cameron, disaster preparedness, Emergency Preparedness, FEMADiane Coleman

…! ADAPT and FEMA FEMA was to have a meeting on their Strategic Plan (https://www.fema.gov/strategic-plan) with various stakeholders, including some disability groups, however, that plan was written without input from the disability community. In fact, but for a picture, there literally was no mention of us! Then a meeting with ADAPT was scheduled for November 6th, and we provided our conference call number. But FEMA Administrator Brock Long prefer…