A review of evidence supporting certain disability rights concerns about “end of life” advocacy

…with Disabilities: Medical Procedures that Violate Civil Rights, which is online at www.ndrn.org Steps need to be taken, beyond what is happening now. Ethics committees and consultations aren’t enough. Statutory surrogates who are not appointed by the person are not enough. The report says “when … there is a perceived or actual conflict between the desires of parents or guardians and the civil and human rights of a person with a disability, but I…

Not Dead Yet’s Public Comment to U.S. Dept. of Health and Human Services on Affordable Care Act’s Nondiscrimination Regulations

September 30, 2013 Via online submission to www.regulations.gov U.S. Department of Health and Human Services Office for Civil Rights Attention: 1557 RFI (RIN 0945-AA02), Hubert H. Humphrey Building, Room 509F, 200 Independence Avenue SW. Washington, DC 20201 Re: Docket No. HHS-OCR-2013-0007 (Request for Information Regarding Nondiscrimination in Certain Health Programs or Activities) Not Dead Yet is a national disability rights group, which…

John Kelly’s Testimony to the New Hampshire House Judiciary Committee In Opposition to HB 1325

…recognition of this fact, when the New England Journal of Medicine held an online poll earlier this year, its invented case was a man with metastatic pancreatic cancer, whose pain was well-controlled. Two thirds of respondents, by the way, opposed legalization. We disabled people have lives that frequently look like the lives of people requesting assisted suicide, but we reject as bizarre the notion that personal dignity is somehow lost through ph…

Second Thoughts Massachusetts Letter to New Mexico Attorney General Gary King Urging Appeal of Assisted Suicide Case

…tion of this fact, when the New England Journal of Medicine (NEJM) held an online poll last year, its hypothetical case was a man with metastatic pancreatic cancer, whose physical pain was well-controlled. Two thirds of NEJM’s respondents opposed legalization. The kind of “extreme pain” that Judge Nash and proponents describe is psychological and social. As Massachusetts Dr. Marcia Angell wrote to the Boston Herald before the 2012 election, “dying…

John Kelly’s Testimony in Opposition to Massachusetts Assisted Suicide Bill H 1998

…recognition of this fact, when the New England Journal of Medicine held an online poll earlier this year, it’s invented case was a man with metastatic pancreatic cancer, whose pain was well-controlled. Two thirds of respondents opposed legalization. No, the suffering being talked about is emotional and social. As Dr. Angell wrote to the Herald last year, “dying sometimes involves great personal indignities, as well as mental distress from the real…