John B. Kelly’s Response to Institute of Medicine’s Committee on Approaching Death Online Survey

…elf, and work part-time as a disability rights advocate. I am a writer and community leader in the disability community. First, I never heard the word “death” uttered around me in the immediate time period after my injury. No one mentioned the possibility of donating my organs, no one said the words “it might be for the best,” no one queried me regarding my “choice” to live or die. The nurses at the rehabilitation hospital were gung ho on getting…

Maryland: Using a “PVS” Diagnosis to justify Organ Harvesting Without Consent

…, chief of medical ethics at Weill Cornell Medical College and author of a coming book, “Rights Come to Mind: Brain Injury, Ethics and the Struggle for Consciousness.”. . . . “Early on, when families have the option to pull the plug, it’s almost impossible to tell what the long-term prognosis will be,” says Dr. Soojin Park, a neurointensivist at the University of Pennsylvania Hospital,. . . . “And then later, when we have the certainty — that this…

Annual Report: October 2019 – September 2020

…,239 Expenses Salaries $108,544 Fringe $19,320 Travel $726 Staff Development $844 Interpreting Services $240 Supplies, Postage, Materials $1,837 Equipment $3,182 Memberships, Subscriptions $2,280 Communications, Website $553 Consultants, Contractual Services $29,242 Miscellaneous $510 Total Expenses $167,278 Net Rev/Exp ($62,039) Year End Fund Balance $172,698…

Not Dead Yet Annual Report: October 2022 – September 2023

…nal Association, Not Dead Yet (NDY), Institute for Patients’ Rights (IPR), Communities Actively Living Independent & Free (CALIF) and individual plaintiffs, Lonnie VanHook and Ingrid Tischer, filed a lawsuit in the U.S. District Court for the Central District of California, asking that California’s End of Life Option Act (EOLOA) be declared unlawful and unconstitutional. Assisted suicide is the most lethal form of disability discrimination. It den…

In Case You Missed It: John Kelly Video Interview On “Me Before You” & Assisted Suicide

…ight to decide for themselves?” So she’s a bigot and she wanted to write a book, and unfortunately for us, millions of people bought the book and are now seeing the movie. We never see the opposite side of the picture, and she admitted that she didn’t speak to any quadriplegics before writing the movie. It’s a cartoon caricature in which a wealthy man who has everything going for him – including a woman who is beautiful, with whom he’s mutually in…