Organ Procurement Guidelines, Health Care Decisions and People With Disabilities

…ty community, but am gratified to report that, in response to all of the letters it received, UNOS sent an email notifying me and others that it withdrew the proposed changes and plans to reissue them for public comment in the near future. The reissued proposal may incorporate some of the input already submitted, but the previous version can be viewed online, and interested groups can sign up to receive notification of future proposals issued for…

Maryland: Using a “PVS” Diagnosis to justify Organ Harvesting Without Consent

…of another person’s body based on that person’s religious, moral or personal values. That is too vague and subject to misuse. There are significant risks to donating a kidney or lobe of a liver. It is not generally within the role of a surrogate to make health care decisions that cannot benefit the person on whose behalf they are acting. Proceeding with an advance directive, wherein the individual has clearly expressed preferences, seems the clea…

Webinar Aug. 29! The Risks of Assisted Suicide Laws for Disability and Eating Disorders Communities

…s, particularly in ways that harm people with disabilities and chronic mental health conditions. The panel will also examine how societal biases can lead to dangerous assumptions that certain lives are less worth living, less worthy of care and healthcare dollars. Our panelists include: Anita Cameron: A prominent activist and Director of Minority Outreach for Not Dead Yet, with extensive experience in disability justice and advocacy. Diane Coleman…