…article in today’s edition of BeyondChron – the Alternative San Francisco online daily. Bess, at The Right to Design, shares a long remembrance of Paul. CDCAN – California Disability Community Action Network issued a short press release. Ben Mattlin shares some thoughts and dedicates part 14 of “Miracle Boy” to Paul Longmore. Martina has written “Memorium” – a poem for Paul Longmore on the Breaks in the Verse blog. Beth Haller at Media dis&dat ha…
…k to it. The journal editors have wisely left this piece unavailable as an online offering to the general public. Anita J. Tarzian, the author of the piece, does some “interesting” things in the course of her essay. Focussing on the “Ashley X” debate, she challenges the question of the surgical alterations to the young girl in question as a “disability rights” issue. She selectively defines “disability rights” issues through the social model often…
…with Disabilities: Medical Procedures that Violate Civil Rights, which is online at www.ndrn.org Steps need to be taken, beyond what is happening now. Ethics committees and consultations aren’t enough. Statutory surrogates who are not appointed by the person are not enough. The report says “when … there is a perceived or actual conflict between the desires of parents or guardians and the civil and human rights of a person with a disability, but I…
September 30, 2013 Via online submission to www.regulations.gov U.S. Department of Health and Human Services Office for Civil Rights Attention: 1557 RFI (RIN 0945-AA02), Hubert H. Humphrey Building, Room 509F, 200 Independence Avenue SW. Washington, DC 20201 Re: Docket No. HHS-OCR-2013-0007 (Request for Information Regarding Nondiscrimination in Certain Health Programs or Activities) Not Dead Yet is a national disability rights group, which…
…recognition of this fact, when the New England Journal of Medicine held an online poll earlier this year, its invented case was a man with metastatic pancreatic cancer, whose pain was well-controlled. Two thirds of respondents, by the way, opposed legalization. We disabled people have lives that frequently look like the lives of people requesting assisted suicide, but we reject as bizarre the notion that personal dignity is somehow lost through ph…
