NDRN’s Report Should Serve As a Call to Conscience for Health Care Providers

…ress release accompanying the report: “Every person is born with civil and human rights and an inherent dignity. The reality that this is happening in the United States is anathema to the core values that we as Americans say we hold. That it is happening to those unable to use their own voice is even worse. This report is meant to start the conversation about how society can and should make medical decisions that uphold the constitutional rights o…

ABC News: NDY’s Stephen Drake Interviewed for Stephen Hawking Story and additional info/context

…y of factory farming and what we do to obtain meat. Those are anything but humane conditions.” If laws treated humans like animals, that could open the door to more abuse against the sick and disabled, Drake said, adding that right-to-die laws that are “sold on the idea of pain and suffering” are “bad public policy.” “The reasons are things like loss of physical autonomy, fear of being a burden and loss of dignity,” he said. “These are not medical…

NDY Public Comment Impacted By A Personal Sorrow

…eligibility for a heart transplant, go here. Finally, to read the rest of my newest comment letter, go here. And previous OPTN comment letters can be found here. It’s time for the U.S. Dept. of Health and Human Services, which contracts with and theoretically oversees OPTN, to take a stand and enforce disability rights in the organ procurement and transplantation system. – Diane Coleman  …

Op-Ed: “Assisted suicide: a chilling prospect for disabled people” by Tanni Grey-Thompson

…that these and other conditions are met.   Professor Hawking states that “human beings should not be allowed to suffer any more than animals”. This is a well-worn argument of the euthanasia lobby – that we put down suffering animals out of kindness, so why don’t we do the same for humans? But what those who use this argument seem to overlook is that people don’t always take their pets to be put down out of compassion: they sometimes do so because…

John Kelly’s Response to IOM Online Survey or “We Love Our Tubes!”

…of the horrors, but we all agree that we must be as sweet and compliant as humanly possible in order to hope for decent treatment. My medical provider is an innovator in home-based care for adults with severe disabilities. The practice has been in the business 30 years and is now expanding its services to include all disabled adults with eligibility for both Medicaid and Medicare. This is a Onecare demonstration project under the ACA. The medical…