…of the horrors, but we all agree that we must be as sweet and compliant as humanly possible in order to hope for decent treatment. My medical provider is an innovator in home-based care for adults with severe disabilities. The practice has been in the business 30 years and is now expanding its services to include all disabled adults with eligibility for both Medicaid and Medicare. This is a Onecare demonstration project under the ACA. The medical…

…t we were having any impact except possibly scaring the decision-makers into perpetual inaction. And, like many of you, I know people who need organ transplants, and sadly recently lost my younger brother for the lack of one, so I want to be able to trust the organ transplant system. I don’t yet trust it, but I am genuinely heartened by the victory this week and the invitation to continue a dialogue. I hope that many of you will participate. You c…

…heir patients. For people with severe and progressive conditions, this is truly dangerous. Appearances are are often deceiving, and medical issues may be complex; a 10-minute visit often accomplishes little. 3. The movements to promote physician assisted suicide and Physicians Orders for Life-Sustaining Treatment (POLST) carry specific dangers for people with severe and progressive disabilities. Both movements feed off of the fears held by physici…