Not Dead Yet’s Policy Work

…ce Guideline for Prescribing Opioids (04/11/22) NDY Public Comment On Federal Healthcare Interim Final Rule In Response To COVID (01/04/21) NDY Public Comment on Draft PCORI Principles (11/13/20) Not Dead Yet Comment On Draft COVID-19 Vaccine Allocation Framework (09/04/20) Public Comment Opposing Proposed Medicaid PASRR Changes (05/20/20) NDY Urges USCIS To Reverse Policies That Kill Ill and Disabled Immigrant Children (09/10/19) NDY Public Comme…

Not Dead Yet’s Op Ed articles

…2) Edward Willard: Edward Willard Has Had ‘A Fantastic Life’ Despite Cerebral Palsy And Wants No Assistance In Dying (Maryland Reporter, 02/09/22) Terri Hancharick: Being disabled does not mean death is better than life: Oppose aid-in-dying (USA Today, 01/28/22) Melvyn R. Tanzman and Lisa Tarricone: Aid in Dying Act offers too few protections for the disabled (Albany Times Union, 01/12/22) (text for non-subscribers) Lisa Blumberg: California Senat…

Annual Report: October 2020 – September 2021

al public comments during the reporting period: NDY Public Comment On Federal Healthcare Interim Final Rule In Response To COVID(01/04/21) NDY Public Comment on Draft PCORI Principles(11/13/20) On 05/13/21, NDY also submitted a public comment thanking NCD for its work on QALYs in connection with the H.R. 3 bill and on Crisis Standards of Care. NDY signed onto 27 policy letters and position statements initiated by other organizations during the rep…

New Jersey Senate Committee Shuts Out Disability Rights Community from Assisted Suicide Hearing

…d look of indifference as they deal with my medical situation and my Cerebral Palsy. My life has no value to them because they see my disability first. “Better off dead than like that” is in their eyes. But then I can see their attitude change as they learn that I’m married, that I have a six-year old son, and that I have a job with responsibilities. They discover that I have a life that they put value on. Mr. Smith’s full testimony is here. Meanw…

Fighting “Better Dead Than Disabled” – NDY Year In Review

…end donation to help us continue the fight for our lives. Not Dead Yet Annual Report: October 2020 – September 2021 Not Dead Yet (NDY) is a national disability rights group headquartered in Rochester, New York since 2008. NDY is governed by a national Board of Directors and currently employs three staff members, a President/CEO, Director of Minority Outreach and New England Regional Director. NDY also contracted with the Disability Rights Educatio…