Eleven Disability Groups File Brief in New York Assisted Suicide Case

[Editor’s Note:  This is a press release concerning a friend-of-the-court brief that NDY filed on behalf of NDY and ten other national and NY disability organizations.]

Not Dead Yet and Ten National and New York State Disability Groups File Friend of the Court Brief in New York Assisted Suicide Case

On January 6, Not Dead Yet and ten other national and New York state disability rights organizations have filed a friend-of-the-court brief in the New York Appellate Division in support of a lower court ruling dismissing a case seeking to legalize physician assisted suicide.

Joining in the Not Dead Yet brief are ADAPT, the Autistic Self Advocacy Network, the Center for Disability Rights, the Disability Rights Center, the Disability Rights Education & Defense Fund, the National Council on Independent Living, the New York Association on Independent Living, Regional Center for Independent Living and United Spinal Association, collectively referred to as the “Disability Rights Amici.” New York attorney Michael Gilberg handled the filing on behalf of the disability organizations.

The case is Myers v. Schneiderman (Index No.151162/15) and the disability brief supports the Supreme Court (County of New York) ruling which was issued October 16, 2015 and the New York State Attorney General seeking to uphold the ruling.

“Our basic position is that when some people get suicide prevention while other people get suicide assistance, and the difference is the person’s age, disability or health status, that’s a problem,” said Not Dead Yet’s president and CEO, Diane Coleman. “It’s a problem of devaluation of people who are being told that others not only agree with their suicide, which is bad enough, but will even help them carry it out. It’s a deadly form of discrimination and, as our brief says, it violates the Americans with Disabilities Act.”

Each of the Disability Rights Amici brings a specific perspective to the policy debate about assisted suicide. For example, the primary mission of ADAPT is to ensure that seniors and people with disabilities are not forced into nursing facilities, but have the choice to receive consumer directed long term care services in their own home. “If the only alternative to death that those in power offer people who require assistance is poverty and segregation in nursing facilities, then it makes no sense to talk about assisted suicide as a ‘choice’”, said Bruce Darling, an ADAPT organizer based in Rochester, New York.

Many people with disabilities acquire them as a result of accidents or trauma, and their prognosis is often uncertain in the early stages. “If assisted suicide had been legal in the past, even if it were supposedly only for those with ‘terminal’ conditions, many of us would not be here today,” said Kelly Buckland, executive director of the National Council on Independent Living. “I might not be here today, and I’m grateful that assisted suicide was not legal back then, and I’m committed to keeping it that way.”

The brief also expresses concerns about the context of health care cost-cutting in which assisted suicide is being advocated. “In an aging society where elder abuse is a growing problem, elders too often face economic or other pressures to get out of the way, whether those pressures come from the health care system or, sadly, from family,” Coleman said.

For more information, go to www.notdeadyet.org.

Do You Enjoy Martinis, Bloody Marys and Margharitas? You can Make Them Tastier AND Help NDY!

There are three things that a lot of people do this time of year: Shop; Give gifts; and drink alchohol. Some of the more popular drinks are martinis, bloody marys and margharitas.  And for a lot of people, those drinks aren’t complete without a salted rim on the glass.

Salting a rim of a glass is a task that can be difficult and sloppy.  But I have good news. There’s a product hot off the shelves that can help you – and if you buy it, you can help Not Dead Yet! Earlier today, our friend, teacher, colleague, ally Paul Timmons made this announcement on Facebook:

My son George Kasper‘s business venture. His Mother and I couldn’t be more proud. And…a dollar from every RimJob you buy is gonna go to Not Dead Yet…so…there’s that….

There are three varieties, all made to neatly salt the rim of your drink of choice.

So go to myrimjob.com and and buy some for yourself or someone you care about – and help out NDY when you do!

Many thanks to Paul Timmons and George Kasper!

Not Dead of Texas Issues Statement on Chris Dunn “Futility” Case

This is a followup to yesterday’s post about Chris Dunn.

Not Dead Yet of Texas has issued a released a release regarding the “futility” decision being fought by the family of Chris Dunn.

For Immediate Release

Not Dead Yet of Texas has for the last 3 legislative sessions supported amending the Futile Care language in the
Texas Advanced Directive Act that allows medical professionals to override the wishes of the individual and/or family members.
The time frames in the law give almost no protection to the individual while medical professionals are protected against any
litigation. It is said and true that you get more protections in law on death row in Texas than you do in Texas hospitals.

This very wrenching contentious issue is usually framed as religious zealots vs medical professionals. Not Dead Yet of Texas
believes that in most cases it is a disability/civil rights issue.

We are currently reaching out to ascertain the facts of the Chris Dunn case.

You can reach Not Dead Yet of Texas by emailing him: bob.adapt@sbcglobal.net

For more info on futility polices check this archive.

For more on Not Dead Yet of Texas, check here and here.

New Futility Case in Texas

It’s been a while since we’ve posted anything on it, but futile care policies have been an area of concern for NDY and other disability rights groups for many years. Things have been quiet for awhile, which isn’t really good news. We only hear about futile care issues if a family goes public – reaching out to us, the press or some other group for assistance in fighting involuntary withholding and or withdrawal of life-sustaining treatment from a family member.

The embedded video above is a news story aired on KTRK in Houston TX.  Below is an excerpt from the written story on the same page:

A local mother filed a lawsuit in an effort to save her son’s life.

Chris Dunn, 46, is on a breathing machine now at Houston Methodist Hospital, receiving life-sustaining treatment. Doctors there think it is best to stop that treatment, but his mother, Evelyn Kelly, is fighting for his life.

Dunn has been in the hospital for 8 weeks because of a mass on his pancreas. His major organs are deteriorating and the hospital wants to stop life-sustaining treatment.

“It’s a mother’s nightmare because they want to come in and they want to turn his life support off and administer some kind of drug,” Kelly said. “I don’t even know what it is.”

Kelly contacted Texas Right to Life and Attorney Joe Nixon for help.

“There’s a statute in Texas that allows hospitals to form a nameless, faceless committee and make a decision that they want to terminate life-sustaining care,” Nixon said.

Kelly shot cell phone video on December 2 inside her son’s hospital room. In the video, Nixon asks Chris is he wants to live.

“Do you want to stay alive?” Nixon asks.

Chris cannot speak because of a breathing tube, but he nods his head and folds his hands in prayer.

There are more questions here than answers. The station’s news report doesn’t dispute that Chris Dunn, the individual the hospital wants to take off life support, is conscious. If his organs are really breaking down, death would be fairly imminent. Why the rush to deprive him of what may be days or weeks. Hate to think it, but maybe it’s money. According to the family, Dunn was without health insurance when he fell ill. We’ll be following this.

Two New Posts by Bill Peace at “Bad Cripple”

NDY board member Bill Peace has been writing more on his blog Bad Cripple. Two of his recent posts last 2 touch directly on NDY concerns.

In You Can’t do That, he describes the ways in which individuals and society focus hard on what he “can’t” do:

The instant negativity attached to disability is raised to a higher level when serious, life threatening illness is at issue. Cancer is bad. All illness is bad. Terminal illness is the worst–a tragedy. Terminal illness is the worst because our very existence is threatened. For some, the response to mortality is primal fear. Fear I get. I have felt primal fear and have had life threatening illnesses. I have almost died more than once. Primal fear however can be overcome with reason.

Read the rest here.

In The Disability Experience, he discusses the weirdnesses – from the annoying to the scary – in being a disabled person in this culture:

It saddens me that the input of people with a disability is so often ignored or dismissed out of hand. When I assert that assisted suicide legislation represents a serious risk to people with a disability, the elderly, and terminally ill I am accused as having an agenda. Sorry but no. I have no agenda. I have an educated opinion based on a detailed knowledge of disability history that should be part of the discussion about assisted suicide legislation. I also grew up on various neurological wards as a child and learned a few things about how hospitals operate. I had a physician offer to end my suffering by foregoing life saving antibiotics. Like many others with a disability, I have something important others need to hear. Don’t talk to me about safe guards built in to assisted suicide legislation. Don’t talk to me about dignity. Don’t talk to me about autonomy.

Read the rest of it here.