From Stephen Mendelsohn: More Media, Etc. From Connecticut Hearings on Assisted Suicide

Stephen Mendelsohn, a disability activist and advocate with Second Thoughts Connecticut, sent this long list of media and some commentary.  I’m very grateful for this and this really deserves a post of its own.  Everything below was compiled and written by Stephen Mendelsohn – we’re all thankful to him for all his work and his testimony (see below) at the Hearing:

 

CT Mirror: http://www.ctmirror.org/story/19490/end-life-bill-brings-comfort-some-fears-vulnerability-others Fair and balanced, yet the comparison Arielle Levin Becker makes between Sara Myers and Cathy Ludlum is highly revealing (note my comment below the story).

New Haven Register (my heads-up e-mailing got us this one, after an earlier story falsely claimed that HB 6645 was full of safeguards): http://nhregister.com/articles/2013/03/19/news/doc51491e71b3e4e463179788.txt  HB 6645 as currently written has no waiting period and only one doctor if the “terminal illness” is deemed “sufficiently advanced,” meaning that someone can get a terminal diagnosis, pick up the lethal medication, and be dead within hours.

WTNH-TV Channel 8: http://www.wtnh.com/dpp/news/politics/weighing-in-on-assisted-suicide#.UVAfWDcsDRp

CT News Junkie: http://www.ctnewsjunkie.com/ctnj.php/archives/entry/right-to-die_or_assisted_suicide/

Picture from Second Thoughts Connecticut press conference, on the website of Senator Joe Markley: http://farm9.static.flickr.com/8509/8574564003_4797be77d7_b.jpg (I am standing on the left, and next to Cathy in the second video above) (Editor – Stephen Mendelsohn on left and next to Cathy Ludlum in the second video above)

Testimony on the bill: http://www.cga.ct.gov/asp/menu/CommDocTmyBillAllComm.asp?bill=HB-06645&doc_year=2013

Video of 15-hour hearing: http://www.ctn.state.ct.us/CTNplayer.asp?odID=8816 John Kelly’s excellent testimony is at just past clip position 2:00; Professor Stephen Mikochik (must see) followed by Claude Holcomb at 5:22; Stephen Mendelsohn at roughly 11:48

Disability Activists Testify, Bear Witness and Sing About Opposing Connecticut Assisted Suicide Bill

Last week was a significant one in Connecticut.  On March 20, the Public Health Committee of the Connecticut legislature held a hearing on H.B. 6645, which would legalize assisted suicide in that state.  NDY board member and Director of Second Thoughts Massachusetts John Kelly testified in opposition to the bill.  Here’s a link to the press release that gives more info on the hearing and Kelly’s testimony.

In addition to Kelly, other disability activists were on hand, as evidenced in the links, videos, and pictures below:

Connecticut Post: General Assembly mulls state-sanctioned suicide:

HARTFORD — The General Assembly is considering the difficult question of whether a dying person should be allowed to legally take his or her own life with the help of a doctor.

The Legislature’s Public Health Committee on Wednesday listened to hours of testimony — mostly in opposition — to a bill that would allow physician-assisted suicide for terminally ill patients.

“This is a ticket to murder,” said John Kelly, director of Second Thoughts, a Massachusetts group that last year helped defeat a similar law in the Bay State.

“This amounts to a government recommendation that sometimes death is the best answer. Doctors make mistakes. Under this bill, a diagnosis can become deadly,” Kelly said.

Hartford Courant Picture Gallery – Pictures of John Kelly, Claude Holcomb and Meg McDermott included in the gallery – all from the disability community.

Elaine Kolb singing, playing guitar and talking; Connecticut disability activist Cathy Ludlum to her right.

My thanks to everyone who worked so hard to be there to let the legislature hear about our opposition to the bill. My apologies for taking this long to put up a blog post about it. If anyone has other links, wants to give names to some of the other people in the videos, etc. – please just write me and I’ll edit the additional info in.

Bill Peace, Stephen Kuusisto and a Little from Me on the Growing Cheerleading Squad for Tomas Young’s Suicide

I plan to put out a couple more posts today if my energy holds out.  There is a lot happening this week.   I think the first order of business is the rolling media nightmare unfolding in regard to Tomas Young.  (Apologies to all about the misspelling of his name – many folks writing on the net – like myself – just seem to have an uncontrollable urge to put an “h” in the name “Tomas.”)  We shared some info and thoughts from two other disability writers on Monday.

Things have gotten much worse since Monday.  Various sites have posted a “Last Letter” from Young that has been forwarded countless places on the web.  Today, he was interviewed on “Democracy Now.”

Both Bill Peace and Stephen Kuusisto have written followups, and they’ll give you a little more info and some excellent thoughts and analysis on this death train.

First from Bill Peace writes on the misleading reporting on Thomas Young:

The Huffington Post published a story yesterday entitled “Thomas Young, Dying Iraq Veteran Pens Last Letter To Bush, Cheney on War’s 10th Anniversary”.  Simply put, the article is dreadful and I will not provide a link. The Huffington Post article is superficial, devoid of analysis. It is spin at its best. I suspect similar articles will abound in the mainstream press in the weeks to come. The die has been cast, a formula has created. The spin doctors are hard at work. Proponents of assisted suicide will characterize Young as heroic and brave. Groups such as Compassion and Choices will argue in the absence of assisted suicide legislation the best we can do to help men like Young who is clearly suffering is VSED.  Liberal anti war activists will use Young’s death to illustrate that war is hell and altruistic men like Young needlessly die. In short, Young has a veritable cheering squad behind him. He is a political pawn with much larger social forces packaging a story to meet their ends.

Stephen Kuusisto writes about how the media, liberal and otherwise, wants Tomas Young to kill himself:

I read this morning a new piece by Nick Wing over at the Huffington Post which repackages Hedges’ narrative frame, again without any critical irony. What seems to be emerging is a liberal cheering section for a veteran’s suicide, tricked out in the language of outrage against America’s war in Iraq. Fair enough: I belong to Poets Against War and have been opposed to American military interventions since Viet Nam–but I don’t have to kill myself in a glass box to make my point. Tomas Young is being rooted for–cheered to turn himself into a sacrificial martyr in a Kafka-esque display. Why is this okay? Why are people not lining up to tell Young that a paralyzed but imaginative life is fully worth living?

Me, I keep going back to one telling passage from Chris Hedges’ original article:

Young is not the first young man to be lured into war by the false sirens of glory and honor and then callously discarded by the war makers. His story has been told many times. It is the story of Hector in “The Iliad.” It is the story of Joe Bonham, the protagonist in Dalton Trumbo’s 1939 novel “Johnny Got His Gun,” whose arms, legs and face are blown away by an artillery shell, leaving him trapped in the inert remains of his body.

Hedges seems to have a problem with distinguishing between fictional characters and real people.  Tomas Young is a real person.  Hector was a mythical character in a story about a dimly-remembered real-life Trojan War.  Bonham was a plot device.  It’s telling that when Hedges wants to talk about people who are used and discarded, he conjures up fictional characters.  Tomas Young is not a fictional character, but a real person.  And if and when he kills himself, his death won’t be a fictional death, but the real thing.  And media folks like Hedges will have used and discarded Young just as surely as Bush and Cheney did.

Bill Peace and Stephen Kuusisto React to “The Crucifixion of Thomas Young” by Chris Hedges

Until last week, I’d never heard of Thomas Young.  But on March 13, Bill Peace published a disturbing post on his Bad Cripple Blog, titled “Thomas Young and Suicide: All the Wrong Questions Asked.“:

I have not thought about Thomas Young in quite some time. He was featured in the 2007 documentary Body of War directed by Phil Donahue and Ellen Spiro. Body of War was a critically acclaimed film that was deemed “emotionally ravaging” and a “stunning achievement”.  I found the film to be morbidly depressing, a perfect dissection of how the media can manipulate young altruistic people interested in making an important contribution to society. Thomas Young was one of many men in the aftermath of the attacks of September 11 that joined the military to make the world a safer place. He accepted without thought that America was going to fight the good fight, the “War on Terror”. Young sincerely wanted to search and destroy those responsible, the so called “evil doers” to use Bush’s words. In April 2004, Young’s fifth day in Iraq, the reality of war was made all too real. Young was was shot and paralyzed on what he described to be a poorly planned mission. Body of War effectively juxtaposed Young’s struggle coping with paralysis against the propaganda used by the Bush administration to justify going to war.

Young I had assumed went on to have a good life. This did not happen apparently. Based on an article  I read by Chris Hedges http://www.truthdig.com/report/item/the_crucifixion_of_tomas_young_20130310/ Young has struggled mightily and has entered into hospice care to die even though he is not terminally ill. Since his injury, Young has taken a laundry list of medications (carbamazepine, coumadin, tizanidine, gabapentin, bupropion, omeprazole, and morphine were mentioned in Body of War). According to Hedges in 2008 Young had a blood clot in his arm, was given blood thinners and briefly hospitalized. A month later the clot migrated to his lung. He experienced a major pulmonary embolism and lapsed into a coma. When he emerged from the coma his speech was slurred and he had lost the use of his upper body as well as his short term memory. Young subsequently started having severe abdominal pain and in desperation had his colon removed and now uses a colostomy bag. This is what I would characterize as a clinical cascade. Without question Young has suffered.

To make a long story short, Young is going to commit suicide (his words) by starvation.  He has a feeding tube, but it’s not entirely clear that he gets all his nutrition that way or if the tube is the only way to ensure he’ll take in enough calories every day.  Hospice will be involved – and, I’m guessing – that since he’s on a feeding tube it’s seen as a simple voluntary withdrawal of life-sustaining treatment, allowing Young to die peacefully.  Except, of course, Young looks at his death  as a suicide (I guess no one told him he should use words like “the feeding tube is a burden”).  It’s a reminder that while there are plenty of scenarios in which withdrawal/refusal of treatment is distinct from suicide, there are plenty of other situations in which the distinction isn’t clear at all – especially to the person who makes the decision to end their life.  I’m willing to bet that the hospice professionals who’ll work with Young would get indignant and angry if I or someone else said they were facilitating a suicide; if I pointed out that Young himself looks at his death as a suicide what would they say then?

I explored a little more and discovered that Stephen Kuusisto had written about Thomas Young on March 12 at Planet of the Blind.  Here’s the opening to his “Chis Hedges and Wounded Warriors“:

When I was in college I had a pal who liked to play what I called “comparative pain”. His life had been hard with an abused childhood, small town poverty; then, a turn of fortune that he learned to hate–a scholarship to the local private college where, among very rich students he perceived his deficiencies all the more.

We used to sit up late and drink bourbon and argue about everything from the merits of T.S. Eliot’s verse to the lathered stupidities of fraternity boys who drove BMWs and spoke with diphthongs though they were from New Jersey and Long Island–they had the faux patrician accents one hears at private schools in these United States. We imagined the advent of this pretentious accent was a result of vanishing elocution classes for the rich–that in the time of Franklin Roosevelt one learned how to speak with true “back bench” verve. We decided this was another thing ruined by the 60’s. So young rich boys had to invent a patois on their own and of course they weren’t equal to the task. You can still hear this accent at America’s tonier colleges. It hasn’t gone away.

So we had fun in the manner of boys with weak super-egos, or, we had fun until we had too much bourbon when we’d invariably turn our attention to “who had it hardest” and that’s when I learned comparative pain is a poor contest. I claimed that having a disability I was wretched. And my pal would relate how his cruel older brother locked him in a closet and no one bothered to find him. We’d argue until bitterness overtook us  and then we’d impeach each other’s character. We were both depressed, each convinced our problems were external.

I’ve only given you a short excerpt from each of these blog posts.  Please go read them both in their entirety.:

Thomas Young and Suicide: All the Wrong Questions Asked by Bill Peace.

Chris Hedges and Wounded Warriors by Stephen Kuusisto

The Crucifixion of Tomas Young by Chris Hedges

 

Canada: CBC Interview with Norm Kunc About Disability Rights Advocates’ Opposition to Legalization of Euthanasia/Assisted Suicide

Below is an embedded video.  It’s an interview of disability rights activist/advocate/scholar/author Norm Kunc.  He was with other anti-assisted suicide/euthanasia protesters in Vancouver yesterday.  A trancript of the interview is provided below video.  I transcribed it myself, so I cannot guarantee it’s error-free, but it’s at worst pretty darn close to verbatim.

Norm Kunc:
Well, I’m trying to make it known that the disability rights community has serious concerns about the legalization of euthanization. When you cut through the arguments on each side, there is one fundamental difference. Those people in favor of legalization believe that they can have a choice to end their own life without having an impact on disabled people. The disability rights community, we say that’s naïve; If we legalize euthanasia based on anecdotal end of life experiences, there will be systemic repercussions in terms of our health system, our legal system – it will have a profound detrimental impact on people with disabilities.

CBC Reporter: What do you fear would happen in your situation?

Norm Kunc:
Right now, I know many of our friends with severe disabilities when they go in the hospital, Do Not Resuscitate orders are placed on their doors without their consent. If we legalize euthanasia, that Do Not Resuscitate order will have more credibility. I think we have to look at the society. There is a pervasive subtle devaluation of people with disabilities. And we can’t believe we can make neutral court decisions apart from those social values. (in answer to unheard question) I have cerebral palsy.