Time Magazine – Sloppy and Inaccurate Kevorkian Obit Written by News Director in “Person of the Year” Issue

I’m sure this won’t be the last of these articles now that we’re at the end of the year, but Time Magazine has printed an obituary for Jack Kevorkian in its “Fond Farewells” section in its “Person of the Year” issue.  The obit was originally written back in June of this year and was written by Howard Chua-Eoan, a News Director at Time Magazine.

I think most people would expect a higher standard of accuracy in an article written by a news director, but Chua-Eoan’s obituary is as full of misinformation on Kevorkian as some of the rankest amateurs writing.  Here’s the obituary, which can be accessed here:

“My specialty is death,” Dr. Jack Kevorkian once told TIME. In the 1980s he began weighing in on the issue that would make him infamous: euthanasia and the plight of the dying. By the time his own end came — on June 3, at 83, from kidney-related complications — the physician was said to have had a role in more than 130 deaths. Many of them came about through use of the Thanatron, the infamous “suicide machine” he rigged to let his patients self-administer lethal levels of narcotics.

In 1999, after Kevorkian had deftly avoided criminal responsibility in several cases, he was convicted of second-degree murder when video surfaced of him administering a deadly dose. Eight years later he was paroled; a quiet period followed, and then he resumed his crusade, pushing his cause vigorously though never again assisting in suicides.

His detractors, though, continued to decry his methods, claiming they skirted the subtleties of psychology and palliative alternatives and that the effectiveness of his death machines robbed the dying of the chance to consider other ways to see out their earthly existence. But Kevorkian’s confidence in his quest remained unruffled. “It’s unstoppable,” he told TIME. “It may not be in my lifetime, but my opponents are going to lose. There’s a lot of human misery out there.”

Most readers of this blog know more about Kevorkian than the general public does.  I highlighted two sentences above in which Kevorkian’s concerns and activities are said to have revolved around people who were dying.  There is ample documentation that the majority of people who made up Kevorkian’s body count weren’t termimally ill at all.  Here’s a list of online resources that help provide that documentation, included in an earlier post attempting to do a reality check on the circulation of Kevorkian mythology:

Turns out, like a great number of media people, Mr. Chua-Eoan is on twitter.  It’s a great new tool, IMO.  Many activists and advocates already know from past experience that there are numerous firewalls between journalists, editors, etc and the rest of us when we want to reach someone with a complaint about accuracy in a story.  National media are more than happy to correct the misspelling of a name, but become unreachable and unresponsive when confronted about factual inaccuracy.

This time, at least, I can be relatively sure that the author I want to complain to (and about) will actually be aware of the concerns about what he’s written.  I’ve already sent him a complaint on twitter and I’ll send a link to this blog the same way.

If anyone else out there would like to reach Mr. Chua-Eoan, you can send him a tweet – @hchuaeoan – to let him know how you feel about the fact-deficient Kevorkian obit.

Speaking of the obit, there are very few comments on it right now and two of them are mine.  Please go visit the following URL and add your comment or at least add a “like” to one of mine.–Stephen Drake 

Canada: NDY Board Member Rhonda Wiebe Writes About “Better Dead Than Disabled” in “The B.C. Catholic”

Rhonda Wiebe is on the NDY Board of Directors.  Yesterday, The B.C. Catholic published an essay by Rhonda titled “Are we better off dead than disabled?”  Here’s the beginning of her excellent piece – a piece that aims to inform sympathetic but otherwise uninformed allies about the most critical barriers and threats facing disabled people:

The perils of the social devaluation of people include legal assisted suicide and euthanasia
By Rhonda Wiebe
The B.C. Catholic

It is not uncommon to hear people without disabilities and people who have recently acquired a disability say they would rather be dead than disabled.

Although politically incorrect, embedded perceptions that life with disability is full of suffering and indignity promote the idea that it’s a death sentence. Able-ist social conditioning equates disability with pain, frailty, incapacity, and poor quality of life. It views persons with disabilities as problems that need to be fixed.

The ‘problem’ of disability

I would argue the “problem” of disability lies more in external social, physical, attitudinal, and architectural barriers.

Please read the rest of her essay at the B.C. Catholic here. –Stephen Drake

RELEASE: Disability Rights Group Announces Opposition to Massachusetts Assisted Suicide Initiative

Boston, MA (PRWEB) December 09, 2011 

On Thursday, December 8 at 12:30 p.m. at the Massachusetts State House, disability rights advocates, speaking as part of a new group they are calling Second Thoughts, publicly announced their opposition to a proposed assisted suicide 2012 ballot initiative in Massachusetts. Led by Boston disability activist John Kelly, with members from a number of the state’s centers for independent living run by people with disabilities, the group plans to add its voice to the growing and diverse opposition to the initiative.

Kelly spoke at a press conference attended by about 25 advocates. Karen Schneiderman, a woman with a disability who testified against an assisted suicide bill in 2010, spoke as a member of Second Thoughts as well. There were also remarks from other individuals who oppose legalization of assisted suicide, including former State Representative Mark Carron.

“Some people may ask why disabled people are speaking out about problems with a proposal that’s supposed to be about terminal illness,” said Kelly, “but when you look at the reasons Oregon reports for giving lethal prescriptions, it’s mainly about the social and emotional issues of becoming disabled, like depending on others and feeling like a burden.”

The top five reasons Oregon doctors report patients requesting suicide all relate to the perceived quality of life — not the conditions of actual dying — of the patient. In order, the reasons listed are the “loss of autonomy” (89.9%), “less able to engage in activities” (87.4%), “loss of dignity” (83.8%), “loss of control of bodily functions” (58.7%) and “feelings of being a burden” (38.3%) (Death With Dignity Act Annual Reports).

“There are so many problems with this initiative, from everyday inaccuracies in diagnosis and prognosis, to a lack of meaningful safeguards against abuse and pressure from self interested family,” said Paul Spooner, executive director of Metro West Center for Independent Living. “The reality is that once the lethal dose is in the house, an heir to the person’s estate could administer it without anyone’s knowledge.”

The Massachusetts disability advocates have reached out for support from national disability groups that have long opposed assisted suicide, especially Not Dead Yet and the Disability Rights Education and Defense Fund.

Last weekend, on December 3, the Massachusetts Medical Society, which represents 23,000 of the state’s
physicians, voted to sustain its long standing opposition to doctor assisted suicide. According to the Society’s press release, Lynda Young, M.D., president of the Society, said that “Physicians of our Society have clearly declared that physician-assisted suicide is inconsistent with the physician’s role as healer and health care provider. At the same time we recognize the importance of patient dignity and the critical role that physicians have in end-of-life care.”
# # #

Massachusetts: Good News on Mass. Medical Society – Organization reaffirms opposition to assisted suicide

As readers of this blog know, there is currently a drive in Massachusetts to put legalization of assisted suicide on the ballot next fall.  Naturally, there has been a lot of concern regarding diversity in a coalition opposing the legalization of assisted suicide in that state.  One source of concern has been whether or not the Massachusetts Medical Society would maintain its stance in opposing assisted suicide as a legitimate medical practice.

Last week, the Society met and voted – on this as well as other matters.  NDY activist John Kelly was turned away, but managed to get a few NDY flyers in the meeting by way of a retired doctor acquaintance he encountered while he was there.

I’m happy to report that the Society strongly reaffirmed its previous opposition to legalization of assisted suicide:

MMS Physicians Reaffirm Opposition to Physician-Assisted Suicide

December 3, 2011Contact: Richard P. Gulla
Phone: (781) 434-7101
Email: rgulla@mms.org

Waltham, Mass. — December 3, 2010 – The Massachusetts Medical Society, the statewide association of physicians with more than 23,000 members, today voted to reaffirm its opposition to physician-assisted suicide, with its House of Delegates voting by a wide margin to maintain a policy the Society has had in effect since 1996.

Opposition to physician-assisted suicide was part of a larger policy statement that includes recognition of patient dignity at the end of life and the physician’s role in caring for terminally-ill patients. The policy was approved by more than 75 percent of the Society’s delegates. (Emphasis added.)

Lynda Young, M.D., president of the Society, said that “Physicians of our Society have clearly declared that physician-assisted suicide  is inconsistent with the physician’s role as healer and health care provider. At the same time we recognize the importance of patient dignity and the critical role that physicians have in end-of-life care.”

Dr. Young said the policy goes beyond a single statement of opposition to physician-assisted suicide to include “support for patient dignity and the alleviation of pain and suffering at the end of life.” Additionally, it includes the Society’s commitment to “provide physicians treating terminally-ill patients with the ethical, medical, social, and legal education, training, and resources to enable them to contribute to the comfort and dignity of the patient and the patient’s family.”

The policy was one of several reaffirmed and adopted at the Society’s 2011 Interim Meeting, which brings hundreds of physicians from across the state to examine and consider specific resolutions on public health policy, health care delivery, and organizational administration by the Society’s House of Delegates, its policy-making body. Resolutions adopted by the delegates become policies of the organization.

Great news, but the work has hardly begun.  We need to see if other stakeholders are going to step up and if everyone can work effectively in a coalition.  We’ll keep folks posted here.  –Stephen Drake

Canadian Assisted Suicide Case Sparks Dueling Letters on Disability

Canadian assisted suicide proponents lost a bid to legalize assisted suicide through Parliament last year.  This year, they turned to the courts to challenge Canada’s laws against assisted suicide and euthanasia as unconstitutional.  The case is now before the Canadian court in Vancouver and the proceedings began November 14, 2011.  Plaintiffs include a woman with ALS.

The public debate is well underway.  On November 13, the Calgary Herald published an op ed by three opponents of legalization entitled “Why we should be afraid of assisted suicide.”   The authors describe the case as follows:
Carter vs. Attorney General of Canada brings a constitutional challenge to Canada’s laws prohibiting assisted suicide and euthanasia. The case also seeks to legalize these practices as a medical treatment. Last year, a bill in Parliament seeking a similar result was overwhelmingly defeated…. The vote was 228 to 59.
Carter seeks to allow a medical practitioner or a person “acting under the general supervision of a medical practitioner” to assist a patient’s suicide. … In the context of traditional medical treatment, “a person acting under the general supervision of a medical practitioner” would include a family member. …
As the authors point out, eligibility would not be limited to people whose condition is terminal:
In Carter, the amended notice of civil claim argues that laws prohibiting physician-assisted suicide are unconstitutional for patients who are “grievously and irremediably ill.” The term is not defined. The amended notice of civil claim does, however, give these examples of qualifying diseases/ conditions: “cancer, chronic renal failure and/or cardiac failure, and degenerative neurological diseases such as Huntington’s disease and multiple sclerosis.” The phrase “grievously and irremediably ill” would also appear to apply to chronic conditions such as diabetes and HIV/AIDS. People who have these diseases and conditions can have years and, sometimes, decades to live.
In response to this op ed, James Swanson, a man with a severely disabled father and friend, sent an angry letter filled with the rhetoric of disability bigotry, which the Herald’s editors entitled “Trapped alive”: 
With one deft scratch of the quill, the authors of this article have condemned hundreds of people to a life in hell. They include both my father and a good friend, who both live in Edmonton, and are both intelligent people who have become trapped in bodies that are failing. My father’s life, as he knew it, ended several years ago when he was struck down by an automobile while out jogging. What parts of his body that are left, reside in a wheelchair. This once-active man in his 90s now resides in a body that is self-destructing in a painful manner. My dad has no quality of life, only a hope that the next day will not be as painful as the last.
My friend is still practising her profession, despite the advanced ALS that has a hold on her. She has made arrangements for a death with dignity in a far more compassionate country. Her ability and foresight have allowed her to control her own future.
Our non-disabled allies called out for a disability response, and two were carried in the online publication.  Mine focused on Swanson’s devaluation of people with severe disabilities and called for equality in suicide prevention
James G. Swanson’s letter demonstrates the profound devaluation that too many feel toward those of us with severe physical disabilities. Swanson describes his father and a friend, disabled by an accident and ALS, respectively, as “trapped” and “condemned to a life in hell.” Social messages that one is “better off dead than disabled” permeate society, including our families.
Swanson’s solution to the so-called problem of disability is assisted suicide. Like most, he hasn’t noticed the difference between suicide and assisted suicide. Apparently, he doesn’t think it matters if someone’s family views their life as devoid of quality. There’s no sign of concern that we might feel that our existence is a burden to those closest to us. The Council of Canadians with Disabilities rightly opposes assisted suicide. A society that not only agrees with a disabled person’s suicide, but guarantees that our suicide attempt results in death, is not treating us as equals. We deserve the same suicide prevention as everybody else, not a streamlined path to death.
The second, submitted by Alison Davis, a disabled woman who leads the UK group No Less Human, talked about the life she would have missed if assisted suicide were legal:
I was glad to see your excellent editorial stating the case against euthanasia. If it had been available to me some years ago, I wouldn’t now be writing to you. I have several severe disabling conditions. I use a wheelchair full time and a vent at night. I have severe pain, which even morphine can’t control.
I wanted to die for more than 10 years, at a time when doctors thought my life expectancy was very short. I attempted suicide seriously several times, and was saved, only because friends found me in time and took me to the emergency room, where I was treated.
At first, I was angry with them for thwarting my wishes. Now, I’m eternally grateful. I want to live now, even though my pain is worse than it was when I wanted to die. What changed my mind is friends who refused to accept my view that my life had no value, and a group of very poor children, who loved me wonderfully and overwhelmingly. I found a reason to live in reaching out to help others, rather than turning the negativity on myself. If assisted suicide had been available then, no one would ever have known the doctors’ prognosis was wrong, or that I’d be missing the best years of my life.
The Canadian Department of Justice has filed various affidavits in the case, including one by Rhonda Wiebe, a woman with disabilities who is Vice President of the Council of Canadians with Disabilities   and Co-Chair of the CCD Ending of Life Ethics Committee and, I’m happy to report, a new member of Not Dead Yet’s Board of Directors.  We’ll be following the case closely. – Diane Coleman