Disability Activists Are Strongly Opposing Maryland Assisted Suicide Bill

Disability rights activists are working to oppose Maryland’s assisted suicide bill, SB 701, on several fronts.

They are active participants in the broad spectrum coalition called Maryland Against Physician Assisted Suicide. The coalition has been preparing for the first hearing on the bill, scheduled for Friday, February 28 beginning at 12:00 noon.

On February 17, an article by Katie Collins-Ihrke, Executive Director of Accessible Resources for Independence, was published in the Frederick News-Post entitled Marylanders need health care, not assisted suicide:

“End-of-life option” bills are consistently marketed to the public as applying only to people who are expected to die within six months, not to people with chronic illnesses or disabilities. But buyer, beware! Apart from the fact there is no way to prevent mistakes in diagnosis, even when more than one doctor is involved, the term “terminal illness” can be surprisingly elastic. An Oregon health official has written that conditions can be deemed terminal even if there is lifesaving treatment, but the person is uninsured or cannot afford it. This includes diabetes and other serious conditions which can be medically managed.

A press conference that will precede the Senate committee hearing will feature three speakers with disabilities:

  • Sheryl Grossman, Community Living Advocate at National Council on Independent Living
  • Sherman Gillums Jr., Chief Strategy & Advocacy Officer at American Veterans
  • Edward Willard, former Director of Advocacy Supports at the Developmental Disabilities Administration

NDY’s Anita Cameron has traveled to Annapolis to testify alongside these and other strong representatives of the disability community. Her powerful testimony is below.

Not Dead Yet, the Resistance

Anita Cameron’s Testimony
Opposing Maryland SB 701
Friday, February 28, 2020

Committee Chair, and Members. Good afternoon. Thank you very much for allowing me to offer my thoughts to you today.

My name is Anita Cameron. I am a 54-year-old with multiple disabilities, two of which are degenerative, and one which will take my life. I am testifying in opposition to Senate Bill 701, the End of Life Option Act.

This bill is a physician assisted suicide bill. It is important to be up front and honest about what this is. Couching it in pretty language is disingenuous at best, and dangerous, at worst.

I am Director of Minority Outreach for Not Dead Yet, a national disability rights organization opposed to physician assisted suicide and euthanasia as deadly forms of discrimination against people with disabilities. I live in Rochester, New York, but work with people of color and marginalized communities around the nation.

My primary reason for opposition to this bill and others like it is that disabled BIPOC (Black, Indigenous and People Of Color) are at particular risk of being harmed by it.

Our health care system is inherently racist. Studies show that Blacks and people of color receive inferior medical treatment compared to Whites. We are less likely to receive adequate treatment for heart conditions, diabetes, cancer and chronic pain. Oregon has made it clear that a person whose condition becomes terminal because they don’t receive healthcare they need would be eligible for assisted suicide.

The lives of people with disabilities are largely devalued by doctors and society, in general, particularly if we are living in poverty. The lives of BIPOC with disabilities are even more devalued due to racism and stereotypes about our communities.

Although assisted suicide requests in Oregon (which this bill and others are modeled on) are lower among Blacks and people of color, that doesn’t mean that this won’t change in more diverse areas, especially as healthcare faces cuts and assisted suicide becomes more acceptable due to well-funded efforts of groups like Compassion and Choices. In fact, though the numbers are small and increases are incremental, there has already been a rise in the number of assisted suicide requests from people of color in California and Colorado since their laws went into effect.

Another reason for my opposition is that doctors would be the gatekeepers of people’s lives under this bill, and can decide for you about your quality of life. Anyone can request assisted suicide, but a doctor decides who gets suicide prevention and who gets suicide assistance. And since the top five reasons people request assisted suicide in Oregon are related to disability, like feelings of being a burden on others, it’s clear that doctors see disability concerns as good reasons to prescribe lethal drugs.

Further, doctors often make mistakes about whether a person is terminal or not. In June, 2009, while living in Washington state, my mother was determined to be in the final stages of Chronic Obstructive Pulmonary Disease and placed in hospice. Two months later, I was told that her body had begun the process of dying. My mother wanted to go home to Colorado to die, so the arrangements were made. A funny thing happened, though. Once she got there, her health began to improve! Over ten years later, she is still alive, lives in her own home in the community and is reasonably active.

Because of the racist nature of our health care system and the tendency of doctors to devalue the lives of disabled and people of color, assisted suicide has no place in Maryland’s healthcare system.

Please vote NO on SB 701.

 

Mike Reynolds: New Hampshire Bill Promotes Assisted Suicide for “Embarrassing Indignities”

Published in today’s Union Leader —

Your Turn, NH – Mike Reynolds:

FOR OVER two decades the independent people of New Hampshire have been solidly against assisted suicide. Since 1996, the New Hampshire legislature has studied or voted down this proposed law so many times it takes two hands to count them all.

Assisted suicide laws are the most egregious form of discrimination against severely disabled and “terminally ill” people. How can we call suicide a public health crisis for most people while facilitating the suicides of older, ill and disabled people? Should we not be doing everything we can to support such persons in having the best possible health care and home care so they have quality of life for however long they have?

With the experience of the laws in Oregon as a guide, the question of assisted suicide becomes, quite frankly, incompatible with New Hampshire values. [The] state motto, “Live Free or Die,” means we reject government interference in our daily lives. Oregon state government’s promotion of an assisted suicide program administered by the health care system means pushing people towards assisted suicide through denials of coverage for treatment and in-home care, covering up abuses, and ignoring incorrect prognoses that lead people to think they are dying when they are not.

The numerous flaws in HB 1659, the “Death with Dignity Act,” are so obvious that New Hampshire should reject this absurd legislation again. With HB 1659, the government would be promoting suicide for what in the preamble it calls “mental anguish over the prospect of losing control and independence, and/or embarrassing indignities.” This is a direct attack on the thousands of disabled Granite Staters who maintain their independence and dignity by directing aides to perform their care.

While assisted suicide proponents depict assisted suicide as only a last resort for people with advanced cancer, Oregon’s doctors have written lethal prescriptions for individuals whose qualifying medical diagnosis for assisted suicide was reported as chronic conditions like diabetes, gastrointestinal disease, arthritis, arteritis, sclerosis, stenosis, kidney failure, and musculoskeletal systems disorders.

As in Oregon, under bill HB1659 a person can be considered “terminal” and therefore eligible for assisted suicide simply by refusing medication they need. By that definition, people who have epilepsy, ongoing infections and other illnesses that can be managed with medication can qualify. This legislation is not limited in scope and is actually far more dangerous than the proponents want to admit.

A report released in May 2018 by the Centers for Disease Control and Prevention reveals that from 1999-2010, suicide among those aged 35-64 increased 49% in Oregon as compared to a 28% increase nationally. In Oregon, the rate of suicide is 21 percent above the national average and their rates of teen suicide have even been higher. There is a clear problem of suicide contagion.

While the bill proponents claim there are safeguards, there is absolutely no oversight once the medication is picked up from the pharmacy. Under the Oregon law and the proposed legislation, a “friend” can encourage an elder to make the assisted suicide request (“just in case”), sign the forms as a witness, pick up the prescription, and even administer the drug (since no independent witness is required). To be perfectly clear, the current bill being debated only discusses “self-administration” of the lethal drugs in the bill’s preamble; nowhere in the substantive provisions is the word mentioned.

This law is also vague about who can access it, but it would be far easier for an eighteen year old with a serious medical condition that could be controlled with medication to access this law than it would for the same eighteen-year-old to access cigarettes or alcohol.

There is nothing compassionate or caring in this bill. Instead it could serve as a template to encourage and even pressure the most vulnerable in our society, our older and critically ill populations, to hasten their deaths. And by giving legal immunity to everyone involved, it creates a legal framework where elder abuse (up to and including homicide), which nationally impacts about 10% of elders, gets a free pass. Please contact your legislators and have them oppose this very dangerous legislation.

Mike Reynolds is a member of Not Dead Yet, a disability rights group opposed to assisted suicide.

NDY’s Anita Cameron Joins NH Disability Advocates To Oppose Assisted Suicide Bill

Not Dead Yet, the Resistance
Press Release

Contacts:  John Kelly 617-952-3302; Anita Cameron 585-259-8746

(Manchester, NH) – Not Dead Yet’s director of minority outreach, Anita Cameron, will join disability rights leaders from the Brain Injury Association of New Hampshire, ABLE New Hampshire, Disability Rights Center and other state and local groups to oppose a New Hampshire assisted suicide bill, HB 1659, being heard before the House Judiciary Committee Wednesday, February 12 at 1:00 p.m.

Head and shoulders photo of Anita Cameron, an African American woman with long dreadlocks and brown sweater.

Cameron was among scores of disability activists arrested during national protests by disabled people to save Medicaid and the Affordable Care Act in 2017. Among other issues, Cameron will share the story of her mother’s mistaken “terminal” diagnosis in her testimony against the NH assisted suicide bill.

“In June, 2009, while living in Washington state, my mother was determined to be in the final stages of Chronic Obstructive Pulmonary Disease and placed in hospice. Two months later, I was told that her body had begun the process of dying. My mother wanted to go home to Colorado to die, so the arrangements were made. Once she got there, her health began to improve! Over ten years later, she is still alive, lives in her own home in the community and is reasonably active.”

John Kelly, director of Second Thoughts and NDY’s New England regional director, will submit written testimony. “We renounce the implication in this bill that some people are ‘better dead than disabled,’” he states. “Either everyone has equal amounts of dignity or we no longer live in a society where everyone is equal under the law.”

The bill’s purpose statement focuses on disability concerns as a reason for implementing assisted suicide: “Many terminally ill patients experience severe, unrelenting suffering, mental anguish over the prospect of losing control and independence, and/or embarrassing indignities for long periods while they are waiting to die . . ..”

NDY’s president and ceo will also submit written testimony. “As a severely disabled person who depends on life-sustaining treatment, the Statement of Purpose in HB 1659 makes it crystal clear that someone like me would be viewed as sitting right in the bill’s crosshairs.”

Disability Advocates Show Up to Oppose Evanston City Council Assisted Suicide Resolution

Patients Rights Action Fund shared the following press advisory sent as disability advocates show up to oppose Evanston City Council assisted suicide resolution:

Tonight, the Evanston City Council will debate and vote on the issue of assisted suicide.

Below are statements from disability rights advocates who oppose assisted suicide if you are planning to cover this.

“Disability advocates nationwide have long opposed assisted suicide legislation as presenting a false choice in how to live or die. Data shows that the vast majority of those who request assisted suicide are in fact disabled people. The sad fact remains that assisted suicide is a loophole for abuse and lack of supports for people with disabilities. Because the Illinois social services system is broken and underfunded, our efforts should focus on investing in home and community based supports.” Amber Smock, Director of Advocacy, Access Living. Media contact: Bridget Hayman bhayman@accessliving.org or (312) 640-2129 : www.accessliving.org

“I oppose the legalization of assisted suicide because it leads to cases of abuse towards people with disabilities. The safeguards which are available have not been effective. In addition, terminal diagnoses are notoriously unreliable, with no assurance of consistency. It can be, and has been, offered by insurance companies instead of life saving treatment. It heightens the stigma of disabled people being a “burden” on others. It preys on people who are already depressed and may be offered as a solution as opposed to suicide prevention. It increases suicides in general.” Clark A. Craig, Community Organizer, Progress Center for Independent Living. Media contact: Clark Craig ccraig@progresscil.org or (708) 209-1500 : www.progresscil.org

Disability Advocates Oppose City Council’s Proposed Assisted Suicide Resolution

They say that “all politics are local.” While bills to legalize assisted suicide are a state issue, proponents of these dangerous bills are engaging in local politics as well.

An example is the Evanston City Council in Illinois. This is the home district of the lead sponsor in the state legislature. Last Thursday, the local newspaper announced that a proposed City Council resolution favoring the bill would be heard before the Council’s Human Services Committee on Monday, February 3rd. (h/t to Stephen Mendelsohn of Second Thoughts Connecticut for alerting us.)

The disability advocates at Progress Center for Independent Living, including Evanston resident Larry Biondi, showed up to ensure that the disability opposition to the resolution was clearly heard. News coverage of the Committee meeting included a photo of Biondi making the case that assisted suicide laws are bad public policy:

Man with brown hair and light orange button down shirt sitting in wheelchair, using speech device and head pointer at microphone, with audience members nearby, some in yellow t-shirts.If the legislation were adopted, he said, it would become “the cheapest treatment available in our profit-driven health care system,” and he claimed there would be no real enforcement for the safeguards against abuse contained in the legislation.

Larry Biondi Addresses Evanston Human Services Committee

Unfortunately, the Committee advanced the resolution for consideration by the full City Council, “but three of the four committee members present suggested they might vote against the measure there” according to the news report. The fight will continue.

This is a great example of local disability advocacy against assisted suicide bills. If there’s an assisted suicide bill in your state, please check what your city council is doing. We can’t afford to let proponents slip this under the radar. If you need resource materials, contact Not Dead Yet for handouts, and check out the National Council on Disability report on the dangers posed by these bills.