Colorado NDY and ADAPT Engage in Funeral March to Protest Assisted Suicide Ballot Measure

[Press Release issued the morning of August 8, 2016 below, and coverage here: Disability rights activists protest against aid-in-dying measure.]

Not Dead Yet, the Resistance

Disability Activists from Not Dead Yet and ADAPT Engage in Funeral March to Protest Assisted Suicide Ballot Measure

Denver – Disability rights activists from ADAPT and Not Dead Yet will hold a funeral march from the Atlantis Community (201 S Cherokee St, Denver, CO 80223) to the Secretary of State Office (1700 Broadway #200, Denver, CO 80290) on Monday, August 8, 2016 to protest the assisted suicide measure being considered for the Colorado ballot. The group plans to step off from the Atlantis Community at 10:15 a.m. and march north to the Secretary of State’s office where they will have a wreath laying ceremony shortly after the noon hour.

“We are engaging in this street theater to educate the community about how legalization of assisted suicide will cause people to needlessly lose their lives through mistakes, coercion and abuse,” said Dawn Russell, ADAPT advocate and Atlantis Community board member.

“Elder abuse, and abuse of people with disabilities, are a rising problem,” said Anita Cameron, an ADAPT advocate, and Not Dead Yet board member. “With legalized physician-assisted suicide, an heir or abusive caregiver may steer someone towards assisted suicide, witness the request, pick up the lethal dose, and even give the drug — no witnesses are required at the death, so who would know?” she said.

“Colorado’s suicide rate is among the highest in the nation,” said Cameron.  “This bill will promote suicide to one class of disabled citizens, rather than provide suicide prevention.  That is discrimination.”

These bills simply do not have any effective safeguards to prevent abuse,” said Robin Stephens, a longtime disability rights activist and Not Dead Yet board member. “Death certificates are required to be falsified, no witness is required at the death, and a greedy heir can witness the request for a lethal prescription. Colorado does not need this initiative.”

ADAPT is a grassroots disability rights organization with chapters in 30 states. It uses nonviolent direct action in order to bring attention and awareness to the lack of civil rights the disability community experiences.

Not Dead Yet is a national, grassroots disability rights group that opposes legalization of assisted suicide and euthanasia as deadly forms of discrimination against old, ill and disabled people. Not Dead Yet helps organize and articulate opposition to these practices based on secular social justice arguments. Not Dead Yet demands the equal protection of the law for the targets of so called “mercy killing” whose lives are seen as worth-less.

 

AUGUST 4: ONLINE VIGIL FOR THE MURDERED DISABLED PEOPLE OF SAGAMIHARA

A few days ago, we reported the news of the massacre of 19 disabled people in Sagamihara, Japan. There’s been a lot of writing within the disability community about this horrific hate crime, but very little in the mainstream press. There have been a few vigils for the victims of the attack, but it’s hard to impossible for all those who want to join in talking, grieving and learning to get together physically.

On Thursday, August 4th, the Disability Visibility Project will be hosting an online vigil and chat starting at 8 PM ET.  Here’s the info from the site:

Online Vigil and Chat

Disabled People of Tsukui Yamayuri En

Sagamihara, Japan

Thursday, August 4, 2016

8 pm Eastern

9 am Japan (Aug. 5)

 

The Disability Visibility Project will be partnering with disabled filmmaker and activist Dominick Evans in an online vigil and chat remembering the 19 disabled people of the Tsukui Yamayuri En residential care facility in Sagamihara, Japan who were murdered and the 26 people that survived on July 26, 2016.

Joining us as a guest host is Dr. Michael Gillan Peckitt, an academic who lives in Nada-Ku, Kobe, Hyogo Prefecture, Japan. He runs a disability related website ‘The Limping Philosopher’ and you can find him on Twitter: @Peckitt.

Lots more about how to participate on this page. Go read all of it here.

NDY Release: “Me Before You” Protesters Call For PSA To Prevent Copycat Suicides

Not Dead Yet, the Resistance

Contacts:
Diane Coleman 708-420-0539
John Kelly 617-536-5140

For Immediate Release:

“Me Before You” Protesters Call For PSA To Prevent Copycat Suicides

Disability rights advocates who protested the film “Me Before You” in cities across the United States are calling on Warner Brothers to add a public service announcement to further releases of the film to help prevent copycat suicides.

In a letter sent today to Kevin Tsujihara, CEO of Warner Brothers, 19 national and 25 state, local and regional disability organizations stated:

“The public’s primary frame of reference can be shaped by what people see in movies and television. Storylines like this perpetuate stigma and discrimination based on disability. We are especially concerned that audiences will believe the desire to kill oneself is normal for those who need a high level of care. This inaccurate belief has been perpetuated by Warner Brothers track record of distributing other films, such as Million Dollar Baby and The Sea Inside, both of which emphasized the same dangerous message.

“. . . Therefore, to reduce the risk of a “copycat” suicide effect, as well as negative impacts on individuals and families in the midst of critical health care decisions, the responsible thing to do is add a public service announcement to online and home entertainment releases at the beginning of the film.”

The public service announcement recommended by the disability organizations is Live On. Disabled Lives Are Worth Living, produced by the Center for Disability Rights in Rochester, New York.

Disability protests of Me Before You received substantial press coverage in late May and June. Members of Not Dead Yet UK protested at the London premier on May 24th, which garnered significant coverage (Guardian, Buzzfeed) during the protest and in the days following.

“The last big example of this tired theme was Million Dollar Baby, which came out before the major growth of social media but still resulted in protests covered in the New York Times,” said Stephen Drake, research analyst for Not Dead Yet (USA).

Disability rights writers and bloggers also blasted the film for its oppressive portrayal of living with significant disabilities like quadriplegia. Examples include articles by disability studies scholar Bill Peace and activist and filmmaker Dominick Evans. Some have been featured in mainstream outlets like Emily Ladau’s article in Salon, Lauren West’s in Huffington Post and Ben Mattlin’s in the Chicago Tribune.

Not Dead Yet’s New England regional director John Kelly has the same level of spinal cord injury as Will Traynor, the lead male character in Me Before You. “Book and screenplay author JoJo Moyes admits she knows nothing about quadriplegics,” said Kelly, “yet her ignorance is allowed to promote the idea that people like me are better off dead. No one’s suicide should be treated noble and inspirational. Our suicides should be viewed as tragedies like anyone else’s.”

Hate Crime: A killing rampage targets disabled people

Like so many in the disability community who have heard this news, we were horrified to begin the July 26th anniversary of the Americans with Disabilities Act by reading of the murder of 19 people with disabilities in a residential institution in Japan. Japan Today reported the following details of the “stabbing rampage”:

The man arrested over a stabbing rampage in which 19 people were killed Tuesday at a residential care facility near Tokyo has told police that he wanted to “save” those with multiple disabilities and feels “no remorse” for what he did, investigative sources said Wednesday.

The sources have also found that Satoshi Uematsu, a 26-year-old former employee of the facility in Sagamihara, Kanagawa Prefecture, sought to buy time by constraining at least two facility workers with binding bands before launching the attack, which also left 26 people injured.

As a result, it took more than 40 minutes for workers at Tsukui Yamayuri En (Tsukui Lily Garden) to make an emergency call to the police after Uematsu entered the facility by breaking a window at around 2 a.m. Tuesday.

Uematsu told investigators that he “tied up” facility staff and made them hand over the keys to the residential areas. The 19 victims—nine men and 10 women ranging in age from 19 to 70—were all found in the residential areas, which are divided into eight sectors, each having self-locking doors.

Most of the victims were stabbed in their necks, with some stab wounds as deep as 10 centimeters. Other wounds were also found on their chests and throats. They were apparently attacked when they were asleep.

Los Angeles Times reports also stated that Uematsu attempted to deliver a three-page letter to Japan Parliament Lower House Speaker Tadamori Oshima’s residence, revealing his views on euthanasia and his murderous plans:

The hand-written letter, which was obtained and released by the Mainichi newspaper, begins abruptly, with the writer saying he “is able to kill 470 disabled people” and a disclaimer that he realizes his threats defy common sense. Uematsu said he reached the conclusion that his plan to kill the disabled should be put “into action” and that “looking at the exhausted faces of the caretakers and the lifeless eyes of the employees of the caretaking facilities makes me feel for Japan and the world.” 

The disabled, he wrote, “live as animals, not humans and many must succumb to a wheelchair for life while often being shunned from their own families.”

He said his goal was a world  “where the severely disabled who cannot manage life at home or be an active member of the society can make the choice of being euthanized with the consent of their guardians. The disabled are only capable of creating unhappiness.”

So far, I’m aware of two disability rights leaders who have written powerful articles in response to this mass killing, the largest in Japan since World War II. Lydia Brown wrote:

We know hate and we know violence, because it is written on our bodies and our souls.

We bear it, heavy, wherever we go. Ableism is the violence in the clinic, in the waiting room, in the social welfare lines, in the classroom, in the recess yard, in the bedroom, in the prisons, in the streets. Ableism is the violence (and threat of violence) we live with each day.

Ableism is the constant apologetics for family members and caregivers who murder their disabled relatives — they must have had it so hard, it must have been such a burden, you musn’t judge unless you’ve walked in their shoes. (In the last few decades, more than 400 disabled people were murdered by relatives or caregivers, and those are only the stories we know about.)

For Lydia’s full article, go here.

Dave Hingsburger wrote:

His statement to the police upon turning himself in that ‘it’s better that disabled people disappear’ isn’t a deranged rant by someone out of control, it’s a calm statement of fact that echos the sentiment of many in society. People with disabilities know this sentiment, we hear it, we experience it and we have come to fear what it will do. Our lives are devalued, are needs seen as special and therefore burdensome, our rights are declared to be gifts rather than guarantees.

But there’s more.

A specific, targeted attack aimed at eradicating a group – a mass murder of a group of people because of who they are, and no where does anyone speak of hate. No mention of this as a hate crime against people with disabilities. No. Where. I have not read every paper of course, but in my searches on the Internet the only time that ‘hate crime’ has been used to describe this event it’s by a disabled writer on a disability blog or on a Facebook post.

For Dave’s whole article, go here.

Yes, the disability community knows violence and hate, alongside other communities whose members face these realities. I hope that we can grieve together and work together for a better world.

 

Paul Gallico, Disability and Love: How and why he changed the ending to “The Snow Goose”

During recent “Me Before You” discussions, some of us wondered if most fictional romances between disabled and nondisabled characters were always cut short. I started thinking about a story I read a long time ago.

I don’t  remember how old I was when I first read The Snow Goose by Paul Gallico. I’m pretty sure that it was between the ages of 10 and 13, because I was already familiar with the story when a made-for-tv version of it aired in 1971.  Here’s a good synopsis of the story from Wikipedia:

The Snow Goose is a simple, short written parable on the regenerative power of friendship and love, set against a backdrop of the horror of war. It documents the growth of a friendship between Philip Rhayader, an artist living a solitary life in an abandoned lighthouse in the marshlands of Essex because of his disabilities, and a young local girl, Fritha. The snow goose, symbolic of both Rhayader (Gallico) and the world itself, wounded by gunshot and many miles from home, is found by Fritha and, as the human friendship blossoms, the bird is nursed back to flight, and revisits the lighthouse in its migration for several years. As Fritha grows up, Rhayader and his small sailboat eventually are lost in the British retreat from Dunkirk, having saved several hundred men. The bird, which was with Rhayader, returns briefly to the grown Fritha on the marshes. She interprets this as Rhayader’s soul taking farewell of her (and realizes she had come to love him). Afterwards, a German pilot destroys Rhayader’s lighthouse and all of his work, except for one portrait Fritha saves after his death: a painting of her as Rhayader first saw her—a child, with the wounded snow goose in her arms.

This is the story that all of us read. It’s the story that’s told in the movie version.

But it’s not the version that Paul Gallico originally wrote.

Many years ago, measured in decades, I read an introduction written by Gallico in the book Three Legends, a collection of 3 of his stories – and The Snow Goose was one of them. In a long introduction, Gallico wrote that the story published in 1941 was not the same story he submitted to the publisher:

“The complaint against the original version of The Snow Goose was that my hero, the deformed painter and the girl Fritha, now grown into woman, had fallen in love and she had come to live with him at his lighthouse before his departure to France, from which he was never to return. At the time I was writing the story it seemed to me a natural thing to happen to these two people and to add poignancy and drama to the final tragedy. The viewpoint of the editors was that their readers would not like to see a man with a deformity united to a healthy girl. The Saturday Evening Post, it must be remembered, was then a family magazine published for Americans and hence subject to all kinds of odd taboos. What was interesting about this particular one was that it was not the living together to which they objected, but the fact that the man was a hunchback.” — From Introduction to Three Legends by Paul Gallico. 1968 paperback edition”(Emphasis added.)

Now, in both versions, Philip Rhayader is lost in the real-life Dunkirk Evacuation – from which many never returned.  But in the first version, Fritha and Philip enjoy a time of loving and living together – and the tragedy is the loss of a great love. The Post editors felt that an unrealized love between the two would be more comfortable for their readers than the idea could actually share love and life.

“Me Before You” and its popularity shows we haven’t moved very far in terms of disability acceptance in the past 70+ years.