Category Archives: action alert

Prepare to Take Action: National Disability Leadership Alliance Calls for Real Medicaid Reform

action alert, activism, advocacy, legislation, Medicaid, national disability leadership alliance, Our News & Commentary Blog

Prepare to Take Action: National Disability Leadership Alliance Calls for Real Medicaid Reform [Note:  Not Dead Yet is part of the National Disability Leadership Alliance.  We share a deep concern about proposed Medicaid cuts that threaten both home and community based services and other essential, life sustaining health care services.  This is a critical time … Continue reading Prepare to Take Action: National Disability Leadership Alliance Calls for Real Medicaid Reform →

More on Minna Mettinen-Kekalainen

action alert, advocacy, als, aspergers, neglect, Our News & Commentary Blog, palliative care

First, over the weekend, Minna’s denial of in-home support went from a regional story to a national one in Canada. The Canadian Press picked up her story and it is now being disseminated all over Canada. This is a link to the story on Metronews.ca. Encouragingly, this story focuses on the consequences of Minna’s withdrawal … Continue reading More on Minna Mettinen-Kekalainen →

Canada: Updates on Minna Mettinen- Kekalainen

action alert, advocacy, als, aspergers, Canada, neglect, Our News & Commentary Blog, palliative care

Several new developments since yesterday – or some new aspects to ones already in the works. First, as I’m writing this, students are staging a protest in Sudbury to raise awareness and keep the pressure up in regard to Minna Mettinen- Kekalainen and the total lack of care and support she is living with as … Continue reading Canada: Updates on Minna Mettinen- Kekalainen →

Canada: Woman Goes on Hunger Strike After Being Denied Basic Care – Help Needed

action alert, advocacy, als, aspergers, blog recommendations, bloggers, Canada, neglect, Our News & Commentary Blog, palliative care

Yesterday, I checked the blog ballastexistenz (which I do about once a week) and found an urgent plea from Amanda Baggs regarding a friend in dire straits. The urgent plea dealt with a friend, living in Sudbury, Ontario. Minna Mettinen-Kekalainen is 42 years old. She has aspergers and ALS. She needs daily care and support … Continue reading Canada: Woman Goes on Hunger Strike After Being Denied Basic Care – Help Needed →

“Public Education” about PWDs hits new low with “Ransom Notes” campaign

action alert, activism, advocacy, Our News & Commentary Blog

As I was busy digging my way through my accumulated email and phone messages this week, I got a call from Ari Ne’eman, president of the Autistic Self Advocacy Network (ASAN). Ari was looking for sign-ons to a letter protesting a new “public education” effort launched by the N.Y.U. Child Study Center. The campaign is … Continue reading “Public Education” about PWDs hits new low with “Ransom Notes” campaign →