Dear Mr. Clooney, We, the undersigned national disability rights organizations, urge you to use your platform to advance disability justice and to defend the rights of people with disabilities against the inherent discrimination and dangers of assisted suicide legislation. For the reasons set forth below, we urge you to reconsider the impact of your involvement. […]
From Senator Lankford’s Office: Lankford Leads Bipartisan, Bicameral Lawmakers Urging HHS and CMS to Monitor Dangers of Physician-Assisted Suicide WASHINGTON, DC — US Senators James Lankford (R-OK) and Tim Kaine (D-VA) sent a bipartisan, bicameral letter to Health and Human Services (HHS) Secretary Robert F. Kennedy, Jr. urging HHS and the Centers for Medicare & […]
Two weeks ago I went to the ER in extreme pain. Normally, I live with level ten pain. I’ve gotten used to it. In a flare, I’ve learned not to moan or cry out. But this pain, which started out as a small annoyance, spread and went down my spine, then, into my chest and […]
Not Dead Yet Comment on HPNA’s Statement on “Medical Aid in Dying” July 5, 2024 Not Dead Yet is a national disability rights organization focused on combatting disability based healthcare discrimination, particularly in the context of advanced or terminal illness. We are extremely disappointed that HPNA [Hospice and Palliative Nurses Association] would consider adopting a […]
Boston Globe photo caption and credit: Disability-rights advocate John Kelly, director of Second Thoughts Massachusetts, at his Fenway apartment. The group opposes what it calls “assisted suicide.” Barry Chin/Globe Staff Voices from the ‘right to die’ debate By Robert Weisman Globe Staff,Updated December 11, 2022, 5:20 p.m. In anticipation of the upcoming reintroduction of an assisted […]
NDLA ORGANIZERS FORUM: Chronic Pain, Opioids, and Disability TUESDAY, AUGUST 21, 2018 1-2 pm Eastern time, 12-1 Central time, 11-12 Mountain time, 10-11 am Pacific time Call-in: 1-515-739-1285 Passcode: 521847# To join through your computer, go to: https://www.freeconferencecall.com/wall/organizersforum Chronic pain is a major issue for many disabled folks. In light of recent efforts to curb opioid abuse […]
In response to a recent New Jersey editorial in favor of legalizing assisted suicide, John Kelly sent a letter which was just published in the Star Ledger under the title “Increased palliative care a better alternative to assisted suicide.” He provided some useful data on the prevalence of medical misdiagnosis and its harm to patients. […]
Not Dead Yet, the Center for Disability Rights, and 11 other NY based disability organizations, submitted public comments on the New York State Medicaid Delivery System Reform Incentive Payment Program (DSRIP) on May 28, 2014, alleging that one of the proposed projects would fund Medicaid providers to save money by steering people to choose death over […]
Christian Sinclair, a palliative care and hospice physician who writes on the Pallimed blog, caught the NPR story on the Organ Procurement and Transplantation Network/United Network for Organ Sharing (OPTN/UNOS) meeting earlier this week to issue new sweeping rules on “Donation after Cardiac Death.” Good news, for now, BTW. We have been informed that the […]
Anyone who has read this blog regularly knows that we hold Ira Byock in high regard. That’s why we nominated him to the IOM’s Committee on Transforming End-of-Life-care. Earlier today, Ira Byock gave testimony to the Vermont Senate Committee on Health and Welfare’s Hearing on End of Life Choices (that means it’s a hearing on […]
