Category Archives: action alert

Action Alert! Speak Out on Proposed Rules for ‘Procuring’ Organs from People with Disabilities

action alert, organ donation, organ transplants, Our News & Commentary Blog, policy, united network for organ sharing

Action Alert: Procuring organs from people with disabilities    Take Action! Comments on proposed rules due Friday, June 15! The United Network on Organ Sharing (UNOS) has issued proposed requirements for organ procurement from people who depend on ventilators or other life sustaining treatment, including people with upper spinal cord injuries and people with neuromuscular disabilities.  … Continue reading Action Alert! Speak Out on Proposed Rules for ‘Procuring’ Organs from People with Disabilities →

NDLA and NCIL Action Alert! (Thurs, July 14) – Urge Congress to Reform, Not Cut Medicaid

action alert, advocacy, budget reduction, congress, national council on independent living, national disability leadership alliance, Our News & Commentary Blog, reality check

Urge Congress to Reform, Not Cut, Medicaid Take Action! Support Medicaid Reform that Promotes Independent Living   Call your Senators and Congressional Representative Toll Free at 866-324-0787 today using the talking points below, and then Take Action to email your message too! BACKGROUND The National Council on Independent Living and independent living advocates from around the … Continue reading NDLA and NCIL Action Alert! (Thurs, July 14) – Urge Congress to Reform, Not Cut Medicaid →

NDLA Action Alert! (Wed, July 13): Contact the White House to Oppose Arbitrary Medicaid Cuts

action alert, advocacy, budget reduction, Medicaid, national disability leadership alliance, Our News & Commentary Blog, White House

Action Alert (for Wed, July 13):  CONTACT THE WHITE HOUSE TO OPPOSE ARBITRARY MEDICAID CUTS! Call and Email the White House TODAY!  NDLA URGES YOU TO CONTACT THE WHITE HOUSE TO OPPOSE ARBITRARY MEDICAID CUTS!  Call Toll Free at 1-888-245-0215 using the talking points below, and then Take Action to email key White House Officials. … Continue reading NDLA Action Alert! (Wed, July 13): Contact the White House to Oppose Arbitrary Medicaid Cuts →

Prepare to Take Action: National Disability Leadership Alliance Calls for Real Medicaid Reform

action alert, activism, advocacy, legislation, Medicaid, national disability leadership alliance, Our News & Commentary Blog

Prepare to Take Action: National Disability Leadership Alliance Calls for Real Medicaid Reform [Note:  Not Dead Yet is part of the National Disability Leadership Alliance.  We share a deep concern about proposed Medicaid cuts that threaten both home and community based services and other essential, life sustaining health care services.  This is a critical time … Continue reading Prepare to Take Action: National Disability Leadership Alliance Calls for Real Medicaid Reform →

More on Minna Mettinen-Kekalainen

action alert, advocacy, als, aspergers, neglect, Our News & Commentary Blog, palliative care

First, over the weekend, Minna’s denial of in-home support went from a regional story to a national one in Canada. The Canadian Press picked up her story and it is now being disseminated all over Canada. This is a link to the story on Metronews.ca. Encouragingly, this story focuses on the consequences of Minna’s withdrawal … Continue reading More on Minna Mettinen-Kekalainen →