I first wrote on March 17th about my fear that the non-invasive ventilator I use everyday might be taken from me if I sought hospital care during this pandemic. The New York “Ventilator Allocation Guidelines”, developed in 2015 to address shortages in a pandemic, specifically state at page 42: In its consideration to protect vulnerable […]
Months of work came to fruition on April 25 – 26, 2014 at the Crystal City Marriott in Arlington, VA. Conference planning experts told us to expect a 10% no show rate, but out of our final count of 68 who signed up to attend (we had initially expected about 50), only 3 missed it. […]
On September 14, three representatives of the National Disability Leadership Alliance (NDLA) met with the Health and Human Services (HHS) Division on Transplantation. Two major concerns were brought to the meeting. Kelly Buckland, the Executive Director of the National Council on Independent Living (NCIL), was one of the participants and NCIL published a brief report […]
Link: https://www.prweb.com/releases/2011/11/prweb8929655.htm Disability Rights Activists from Not Dead Yet and National Council on Disability Featured in Dr. Oz Segment on Assisted Suicide Members of Not Dead Yet and National Council on Disability were featured in a Dr. Oz segment on assisted suicide. Members expressed opposition to assisted suicide, but overall the segment was biased in […]
Yesterday – November 1 – the anticipated/dreaded Dr. Oz show on assisted suicide aired in most places, although syndicated shows such as Dr. Oz often play out on different dates in different locations. Disability activists Nadina LaSpina, Danny Robert, Ari Ne’eman, Julie Maury, Hope Derogatis and Bill Peace were all in the audience. Danny Robert […]
Ari Ne’eman has a long essay on the Huffington Post on health care reform and the concerns of the disability community. Ari is the founding President of the Autistic Self-Advocacy Network (ASAN). He is also – full disclosure alert – a friend and colleague of mine – although we have yet to meet face-to-face. The […]
