Category Archives: better dead than disabled

D.C. Area Event: “Better Off Dead?” with Liz Carr – Film screening and panel discussion

Join the Center for Accessibility for an in-person screening and discussion of this groundbreaking documentary with Liz Carr and other panelists: Friday, September 20, 10:30am – 2:00pm, Registration Martin Luther King Jr. Memorial Library – Central Library, 901 G Street NW, WASHINGTON, D.C. Start the morning with a screening of the acclaimed 2024 BBC Documentary Better … Continue reading D.C. Area Event: “Better Off Dead?” with Liz Carr – Film screening and panel discussion

Assisted Suicide Laws Based On the Oregon Model Sweep In Disabled People

By Lisa Blumberg, JD In 2014, in connection with whether assisted suicide laws would ever be expanded to include people with cognitive  decline, Barbara Coombs Lee, then director of Compassion & Choices, said, “It is an issue for another day but is no less compelling.” This was a momentary slip. The political strategy of Compassion … Continue reading Assisted Suicide Laws Based On the Oregon Model Sweep In Disabled People

A Watershed Moment: NIH Designates Disabled People as a Health Disparity Population

By Lisa Blumberg, JD In late 2023, the National Institute on Minority Health and Health Disparities (NIMHD), designated people with disabilities as a population with health disparities for research supported by the National Institutes of Health (NIH). This means that NIMHD now recognizes that people with disabilities as a group experience significant disparities in their rates of … Continue reading A Watershed Moment: NIH Designates Disabled People as a Health Disparity Population

Lisa Blumberg: Brain Injured Are Denied Life Sustaining Treatment Too Early

  A 2007 Not Dead Yet blog described “rush to judgment” cases where people who had sustained a major brain injury were denied life sustaining treatment before appropriate time had passed to determine if they could become conscious. It referred to an article co-authored by Dr. Joel Frader, now a member of the Northwestern Center … Continue reading Lisa Blumberg: Brain Injured Are Denied Life Sustaining Treatment Too Early

NDY Comment on Comment on Proposed Texas Futility Regulations

July 12, 2024 HHS Office of Inspector General – Chief Counsel Division P.O. Box 85200 Austin, Texas 78708 Email: IG_Rules_Comments_Inbox@hhsc.state.tx.us RE: Proposed Regulations published in the June 14, 2024 Texas Register Dear Chief Counsel: Not Dead Yet is a national disability rights organization focused on combatting disability- based healthcare discrimination, particularly in the context of … Continue reading NDY Comment on Comment on Proposed Texas Futility Regulations