By Lisa Blumberg Lisa Blumberg The traditional strategy of groups promoting assisted suicide for initially passing a law legalizing the practice is by touting a few minimal requirements as inviolable safeguards. Assisted suicide, they assert, will be a rarely used option for a small, well-vetted cohort of people who are dying, suffering and with […]
By Lisa Blumberg In a widespread disaster grievously impacting people in general, people who happen to have disabilities tend to be invisible. This may partly stem from the “better dead than disabled” ethos. If a disability is considered to irretrievably diminish the quality and value of your life, why be concerned about other problems could […]
It’s Faustian – giving a nondisabled or slightly disabled person a chance to deny themselves access to food and water if they become significantly disabled and have resulting functional impairments. End of Life Choices New York, a leading supporter of legalized assisted suicide, has developed an “Advance Directive for Receiving Oral Feeding and Fluids in […]
Trisomy 18 is a genetic condition that usually results in physical health problems and cognitive limitations. Life expectancy is currently shorter than typical but people can live into their 20’s and 30’s and one American with trisomy 18, Megan Hayes, celebrated her fortieth birthday with fanfare. Unfortunately, it seems that this information has been slow […]
By Lisa Blumberg, JD In 2014, in connection with whether assisted suicide laws would ever be expanded to include people with cognitive decline, Barbara Coombs Lee, then director of Compassion & Choices, said, “It is an issue for another day but is no less compelling.” This was a momentary slip. The political strategy of Compassion […]
By Lisa Blumberg, JD In late 2023, the National Institute on Minority Health and Health Disparities (NIMHD), designated people with disabilities as a population with health disparities for research supported by the National Institutes of Health (NIH). This means that NIMHD now recognizes that people with disabilities as a group experience significant disparities in their rates of […]
A 2007 Not Dead Yet blog described “rush to judgment” cases where people who had sustained a major brain injury were denied life sustaining treatment before appropriate time had passed to determine if they could become conscious. It referred to an article co-authored by Dr. Joel Frader, now a member of the Northwestern Center […]
July 12, 2024 HHS Office of Inspector General – Chief Counsel Division P.O. Box 85200 Austin, Texas 78708 Email: IG_Rules_Comments_Inbox@hhsc.state.tx.us RE: Proposed Regulations published in the June 14, 2024 Texas Register Dear Chief Counsel: Not Dead Yet is a national disability rights organization focused on combatting disability- based healthcare discrimination, particularly in the context of […]
Not Dead Yet Comment on HPNA’s Statement on “Medical Aid in Dying” July 5, 2024 Not Dead Yet is a national disability rights organization focused on combatting disability based healthcare discrimination, particularly in the context of advanced or terminal illness. We are extremely disappointed that HPNA [Hospice and Palliative Nurses Association] would consider adopting a […]
The updating of the 504 Regulations by the Department of Health and Human Services under the Biden-Harris administration is historic. Various provisions included in the amendment interact and work together to promote equal access to healthcare for persons with disabilities. Not Dead Yet’s response to the Department’s request for public comment when the updates were […]
