Trisomy 18 is a genetic condition that usually results in physical health problems and cognitive limitations. Life expectancy is currently shorter than typical but people can live into their 20’s and 30’s and one American with trisomy 18, Megan Hayes, celebrated her fortieth birthday with fanfare. Unfortunately, it seems that this information has been slow […]
July 12, 2024 HHS Office of Inspector General – Chief Counsel Division P.O. Box 85200 Austin, Texas 78708 Email: IG_Rules_Comments_Inbox@hhsc.state.tx.us RE: Proposed Regulations published in the June 14, 2024 Texas Register Dear Chief Counsel: Not Dead Yet is a national disability rights organization focused on combatting disability- based healthcare discrimination, particularly in the context of […]
Recent Medscape Survey Indicates that Doctors are Divided on Life and Death Issues by Lisa Blumberg Medscape is an online resource for healthcare professionals. It provides medical news and information and does surveys on current issues. (1) Its 2022 survey of 4100 U.S. doctors on “Right and Wrong in Medicine: Life, Death and Wrenching Choices” […]
As July 26, the 31st Anniversary of the Americans With Disabilities Act, approaches, the National Council on Independent Living is holding its annual conference. NCIL has announced that its annual Advocacy Priorities Guide is now available, containing “specific information on the national legislative and policy priorities identified biannually by the NCIL membership.” NCIL’s Healthcare priorities include […]
June 11, 2021 By: Andrés J. Gallegos, Jennifer M. Sender ROBBINS, SALOMON & PATT, LTD. SEEKS JUSTICE FOR MICHAEL HICKSON, FILES WRONGFUL DEATH LAWSUIT AGAINST ST. DAVID’S SOUTH AUSTIN MEDICAL CENTER & ITS PHYSICIANS Robbins, Salomon & Patt, Ltd. (RSP) on June 10, 2021, filed a multi-count wrongful death lawsuit against St. David’s South Austin Medical Center […]
[Published in the CTPost on April 1, 2021, and New Haven Register April 3.] State needs health care, not “death with dignity” Joan Cavanagh Apr 1, 2021 Anyone who has been with loved ones facing serious, painful illness will empathize deeply with the testimonies in Ed Stannard’s Sunday, March 21 article. I have. And I […]
[Press Release from the law firm involved:] FOR IMMEDIATE RELEASE March 16, 2021 Chicago, Illinois ROBBINS, SALOMON & PATT, LTD. SEEKS JUSTICE FOR MICHAEL HICKSON, FILES LAWSUIT AGAINST GUARDIANSHIP PROGRAM Robbins, Salomon & Patt, Ltd. (RSP) on March 10, 2021, filed a lawsuit against Family Eldercare, Inc., a Texas guardianship program and two of its […]
Not Dead Yet, with partners the Disability Rights Education & Defense Fund and the Patients Rights Action Fund, have assembled a total of 30 disability rights and racial justice organizations to support further regulatory action by the U.S. Department of Health and Human Services Office for Civil Rights. Specifically, the groups are urging the formal […]
On October 8, 2020, Not Dead Yet, National ADAPT, ADAPT of Texas and the Autistic Self Advocacy Network joined in a friend-of-the-court (“amicus”) brief filed by Texas attorney Michelle Hayes to support Tinslee Lewis and her mother’s case to maintain life support. The “strange bedfellows” amici groups include disability rights, religious and pro-life organizations. Tinslee […]
On July 24th, ADAPT of Texas filed a complaint with the federal Department of Health and Human Services Office for Civil Rights (OCR) concerning the death of Michael Hickson, a Black Disabled man, at St. David’s South Austin Medical Center. The complaint called for . . . “. . . an investigation of St David’s […]
