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Category: “end of life”

Response: “Neurologic Diseases and MAiD” in The American Journal of Bioethics

Jules Good writes in response to “Neurologic Diseases and MAiD: Aid-In-Dying Laws Create an Underclass of Patients Based on Disability” by Lonny Shavelson, Thaddeus M. Pope, Margaret Pabst Battin, Alicia Oulette & Benzi Kluger, published in The American Journal of Bioethics 16 August 2022: Legal assisted suicide puts disabled people in danger of being killed […]

John Kelly and Ruthie Poole Quoted On Disability Opposition To Assisted Suicide Bill

A Boston University News Service article,  Medical aid in dying bills split Massachusetts once again,  yesterday extensively quoted John Kelly, NDY’s New England Regional Director, as well as Ruthie Poole, President of the statewide organization M-POWER. While their disability rights based concerns about the Massachusetts assisted suicide bill should have been featured much earlier in […]

NDY Submits Public Comment to NY Dept. of Health on Advance Care Planning

The New York Department of Health recently requested public input from health care providers and patients on how to make advance care planning forms more understandable and easy to use. The Department provided a response template with questions focused on people’s experiences with three forms: the health care proxy, out-of-hospital do not resuscitate order (DNR) […]

Supplementing Your Advance Directive With A Video

Kaiser Health News recently carried an article encouraging people to create videos to help explain what’s in their advance directives, which are often overly complex legal boilerplate or overly simplistic checkbox forms. One thing I like about the article, Straight From The Patient’s Mouth: Videos Can Clearly State Your End-Of-Life Wishes, is the discussion of […]

NDY Files Public Comment on CMS Proposal on Advance Care Planning

NDY’s comment letter can be summarized as follows:  We do not oppose payment to physicians for advance care planning discussions with their patients, but we want the payment regulation delayed until the disability community and others can, with CMS support, develop new advance care planning informational materials that do not rely on “better dead than […]

Not Dead Yet, ASAN and NCIL Weigh In on IOM Report on Dying in America

The Institute of Medicine recently solicited organizational statements of commitment in connection with its report on Dying in America.  The IOM is holding a meeting on Friday, March 20 that’s open to the public and accessible online. Not Dead Yet committed to work on advance care planning and professional education.  To be honest, we aren’t […]

Not Dead Yet Submits Written Comments to IOM Transforming End-of-Life Care Committee

As folks who read this blog already know, the Institute of Medicine’s Transforming End-of-Life Care Committee sets aside a portion of its meeting agenda to receive public comments.  At the Committee’s second public meeting, held at Stanford on May 29, DREDF’s Marilyn Golden attended to provide public comments. Not Dead Yet previously submitted written input […]