Category Archives: Our News & Commentary Blog

Disability Rights Leadership Institute on Bioethics: Advancing the Disability Rights Perspective on Bioethics Issues

Months of work came to fruition on April 25 – 26, 2014 at the Crystal City Marriott in Arlington, VA.  Conference planning experts told us to expect a 10% no show rate, but out of our final count of 68 who signed up to attend (we had initially expected about 50), only 3 missed it.  … Continue reading Disability Rights Leadership Institute on Bioethics: Advancing the Disability Rights Perspective on Bioethics Issues

Second Thoughts Connecticut Negotiates POLST/MOLST Legislation With Consumer Protections We Can Live With

National Healthcare Decisions Day is April 16th.  I hadn’t really expected the Centers for Disease Control to be one of the leading resources for my intro on this topic, but they had quite a bit to say: April 16th is recognized each year as National Healthcare Decisions Day to inspire, educate, and empower the public … Continue reading Second Thoughts Connecticut Negotiates POLST/MOLST Legislation With Consumer Protections We Can Live With

Dialogue Begins About Feeding Tubes and Breathing Devices With Respecting Choices Program

Last December, a significant number of national and local disability rights organizations as well as individuals with disabilities and supporters signed onto a letter addressed to the Respecting Choices advance care planning program at Gundersen Health Systems in LaCrosse, Wisconsin.  The letter criticized two documents for inaccuracy and bias in their discussions of feeding tubes, … Continue reading Dialogue Begins About Feeding Tubes and Breathing Devices With Respecting Choices Program

R U Ready? Portlight Strategies, Emergency Preparedness and Media Awareness, April 1 – 7. Share Your Stories!

I’m getting this out a little later than I’d planned due to getting hit hard with a nasty cold late last week.   What follows is an important effort regarding the safety and welfare of people with disabilities (and other underserved folks) in areas where disaster strikes.  I’m cutting and pasting the alert from Portlight Strategies … Continue reading R U Ready? Portlight Strategies, Emergency Preparedness and Media Awareness, April 1 – 7. Share Your Stories!

Press Release: Disability Opposition to Assisted Suicide Bills Helped Secure Third Defeat In New England States This Session

[Editor’s note:  For the PRWeb online version of this release in pdf format, go here.] On Friday, it became official: for the second consecutive year, the Connecticut legislature rejected assisted suicide legislation. Disability advocates celebrated as the state’s Public Health Committee, like the Massachusetts Joint Committee On Public Health a week earlier, let its assisted … Continue reading Press Release: Disability Opposition to Assisted Suicide Bills Helped Secure Third Defeat In New England States This Session