(Editor’s note – I didn’t know Alison well. We met only once at a conference and corresponded a few times. But I think she’s the only person I’ve met older than myself with lifelong treated hydrocephalus. Alison had spina bifida, while I acquired hydrocephalus through other means. She was a valued ally and a strong … Continue reading Farewell to Alison Davis – Ally and Activist (1955-2013)
On December 5, 2013, NDY’s John Kelly talked about the Tim Bowers case during public comments he provided by telephone to the National Council on Disability. Bowers is the Indiana hunter who was injured in a fall and died the next day when he told doctors to stop life support. John requested the Council’s help … Continue reading John Kelly Talks About the Tim Bowers Case
As regular readers of the NDY blog know, the disability community has concerns about Physician Orders for Life-Sustaining Treatment (POLST). (For NDY’s overall take on the subject, go here, and for NDY’s summary policy paper on POLST, go here.) For one thing, even though it says “for” life-sustaining treatment, it would be more accurate to say “on” … Continue reading John Kelly Quoted in NPR Thanksgiving Day Article on POLST
This is old news, but good news. On June 25, 2013, a Smithsonian press release announced that: The Smithsonian’s National Museum of American History will launch “EveryBody: An Artifact History of Disability in America” to explore themes and events related to the history of people with disabilities in the U.S. and offer a new perspective … Continue reading Not Dead Yet in the Smithsonian
[Editor’s Note: Cathy Ludlum submitted this response to the IOM Committee’s online survey on Oct. 31, before the Nov. 1 deadline, so this is a belated sharing of her excellent input. Let’s hope they pay attention as they prepare their final report that is due in 2014.] Question: If you are an individual living with … Continue reading Cathy Ludlum of Second Thoughts CT Responds to IOM Committee on Approaching Death
