NDY’s comment letter can be summarized as follows: We do not oppose payment to physicians for advance care planning discussions with their patients, but we want the payment regulation delayed until the disability community and others can, with CMS support, develop new advance care planning informational materials that do not rely on “better dead than […]
The Institute of Medicine recently solicited organizational statements of commitment in connection with its report on Dying in America. The IOM is holding a meeting on Friday, March 20 that’s open to the public and accessible online. Not Dead Yet committed to work on advance care planning and professional education. To be honest, we aren’t […]
As regular readers of the NDY blog know, the disability community has concerns about Physician Orders for Life-Sustaining Treatment (POLST). (For NDY’s overall take on the subject, go here, and for NDY’s summary policy paper on POLST, go here.) For one thing, even though it says “for” life-sustaining treatment, it would be more accurate to say “on” […]
Today, November 1st, is the last day to provide input to the Institute of Medicine’s Committee on Approaching Death via their online survey, the subject of a previous blog. Yesterday I took the opportunity to submit the following personal story involving some disturbing communications from medical professionals a couple years ago when I had some […]
Summary: Not Dead Yet, a national disability rights organization, is calling upon Health and Human Services Secretary Kathleen Sebelius and the Organ Procurement and Transplantation Network to adopt national standards prohibiting organ procurement staff from initiating organ donation discussions with individuals or family members before they have made a decision to withdraw life-sustaining treatment. The […]
As folks who read this blog already know, the Institute of Medicine’s Transforming End-of-Life Care Committee sets aside a portion of its meeting agenda to receive public comments. At the Committee’s second public meeting, held at Stanford on May 29, DREDF’s Marilyn Golden attended to provide public comments. Not Dead Yet previously submitted written input […]
The second of six expected meetings of the Institute of Medicine Transforming End-of-Life Care Committee was held on May 29 at the Stanford University School of Medicine in Stanford, California. The topics addressed by the Committee include health care and long term services and supports issues facing people with chronic conditions and disabilities who may […]
Disability Group Urges IOM to Remedy “Glaring Omission” in Membership on End-of-Life Committee On Tuesday, January 29, 2013, Not Dead Yet submitted recommendations that two new members be appointed to the Institute of Medicine’s recently formed Committee on Transforming End-of-Life Care to remedy what it called “glaring omissions.” The group recommended Kelly Buckland, Executive Director […]
