I’ve previously reported on disability community efforts to influence the workings of the Institute of Medicine’s Committee on Transforming End-of-Life Care, now renamed the Committee on Approaching Death.  At the outset, NDY filed comments and issued a press release urging the Committee to add disability representation, specifically Kelly Buckland of the National Council on Independent … Continue reading Institute of Medicine’s Committee on Approaching Death Requests Public Comments Via Online Survey By November 1st →

[Ed. Note – For a pdf-formatted version of this press release, including a photo of John, go here.] Boston, MA (PRWEB) September 24, 2013 Not Dead Yet has hired John Kelly as regional director for advocacy in the New England states. Kelly is also director of Second Thoughts Massachusetts, a disability rights group which played … Continue reading Not Dead Yet Hires John Kelly as Regional Director for New England States →

On September 9th, I submitted another comment letter to the Organ Procurement and Transplantation Network (OPTN).  The letter addressed the latest proposed rewrite of OPTN policies. There are two new things about this comment letter that I want to share.  The first is a personal sorrow.  Four days before I wrote the letter, I lost … Continue reading NDY Public Comment Impacted By A Personal Sorrow →