Category Archives: Our News & Commentary Blog

Last Day to Submit Input to IOM Committee on Approaching Death – Personal Story

Today, November 1st, is the last day to provide input to the Institute of Medicine’s Committee on Approaching Death via their online survey, the subject of a previous blog.  Yesterday I took the opportunity to submit the following personal story involving some disturbing communications from medical professionals a couple years ago when I had some … Continue reading Last Day to Submit Input to IOM Committee on Approaching Death – Personal Story

Not Dead Yet UK: “Real Disability Activists and Masquerades” by Dr. Kevin Fitzpatrick OBE

  (Editor’s Note – you can read this article at the Not Dead Yet UK site – that version includes a couple of links absent here.  Click title to go to original article.  Please read to the end – I’ve added a couple of links of my own on similar issues we’ve dealt with in … Continue reading Not Dead Yet UK: “Real Disability Activists and Masquerades” by Dr. Kevin Fitzpatrick OBE

RELEASE: Canadian Association for Community Living Relieved at Dismissal of Appeal in Rasouli Case

The Supreme Court of Canada has dismissed an appeal that would have permitted doctors to end life support for a severely brain-damaged man without the consent of his family or a substitute decision maker. Under the Health Care Consent Act, doctors who want to withdraw life support from an incapacitated person without the consent of … Continue reading RELEASE: Canadian Association for Community Living Relieved at Dismissal of Appeal in Rasouli Case

Autistic Self Advocacy Network: “ASAN Condemns Media Coverage of the Attempted Murder of Issy Stapleton” (Release)

ASAN Condemns Media Coverage of the Attempted Murder of Issy Stapleton October 14, 2013 The Autistic Self Advocacy Network issued a statement on Monday, October 14th, expressing dismay at the media coverage of the attempted murder of Issy Stapleton, age 14. Both local and national media coverage of Issy’s attempted murder have emphasized her mother’s … Continue reading Autistic Self Advocacy Network: “ASAN Condemns Media Coverage of the Attempted Murder of Issy Stapleton” (Release)

Institute of Medicine’s Committee on Approaching Death Requests Public Comments Via Online Survey By November 1st

I’ve previously reported on disability community efforts to influence the workings of the Institute of Medicine’s Committee on Transforming End-of-Life Care, now renamed the Committee on Approaching Death.  At the outset, NDY filed comments and issued a press release urging the Committee to add disability representation, specifically Kelly Buckland of the National Council on Independent … Continue reading Institute of Medicine’s Committee on Approaching Death Requests Public Comments Via Online Survey By November 1st